I'm trying to decide who to make an appointment with and would really love opinions from people who have seen these doctors? I don't know how to choose a LLMD at all...
Thank you!
[ 05-29-2014, 05:00 PM: Message edited by: Lymetoo ]
Posts: 62 | From Chicago, IL | Registered: May 2014
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posted
I suggest you change the title of your post to "Need Feedback on Dr. M in IL & Dr. W in WI. Click on the pencil and paper icon, make your changes, then click on "Edit Post".
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Here is some excellent advice from poster 'TF' who was ill for many years, saw many doctors and finally got well when she found the right LLMD and treatment:
"You need a Lyme doctor. This is a doctor who treats Lyme disease patients exclusively or nearly exclusively.
It is extremely difficult to get rid of Lyme disease, so you go for expertise. A doctor develops expertise with Lyme disease by treating it all the time.
Find a doctor who is curing people of Lyme disease. Many doctors treat Lyme, but very few know enough to get rid of it for people. I know a few such doctors.
Find a doctor who follows the Burrascano protocol. The document is here:
Read and STUDY it to get your education on this disease and what good Lyme treatment looks like.
Here are a few points from Dr. B's guidelines:
You must attack both the regular and cyst (or other) form of Lyme simultaneously--requires 2 different antibiotics to do so.
You must test the patient for all co-infections and other physical ailments (thyroid, etc.) and treat everything the person has.
You must treat all co-infections (including Mycoplasma, etc.) or the patient will not get well.
You must use Igenex for most of these tests--they are a tick-borne disease specialty lab in Calif.
You must use very high doses of antibiotics to kill the diseases (bactericidal doses). (See page 18 for dosages. For example, 6 grams of Amoxicillin per day--that's 6,000 mg per day--plus other antibiotics with it. That is how I got well.)
You must give the patient supplements, probiotics, herbs such as Artimesinin if Babesiosis is suspected, and require adherence to rules such as low carb diet, no alcohol, no smoking, rest, and a certain type of exercise (one continuous hour of weightlifting--no aerobics) as the patient is able to do it.
You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).
These are just a few of the important points you will see in the guidelines. You want a doc who does EVERYTHING Burrascano says to do. He treated Lyme for over 25 years, and compiled what he learned so that other docs could benefit from it. Read it in his Guidelines.
Be willing to travel to see a good doctor. I had undiagnosed Lyme disease (plus Babesiosis and Bartonellosis) for at least 10 years before a doctor figured out what was wrong with me.
I wasted 2 years with 2 Lyme doctors who did not know enough to cure me. Then, I studied the Burrascano Guidelines, traveled to hear Burrascano speak, asked him a question about my case, and I knew that my treatment was inadequate.
I then contacted my state Lyme support groups (see "Support Groups" on left side of page) and asked for a Lyme doctor who followed the Burrascano protocol. I switched doctors and I was finished with treatment in 13 months.
That was 9 years ago, and I am still cured of Lyme disease. I sent 5 of my friends to Burrascano type doctors and they all got well also.
I stick around LymeNet just to help people through the Lyme doctor learning curve.
So, educate yourself on what good Lyme treatment looks like. Don't waste time and money on other things. You will need all of your money for good Lyme treatment.
Most good Lyme doctors have long waiting lists or are not taking new patients."
Posts: 9020 | From Illinois | Registered: May 2006
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