Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I would like current feedback on Dr. M in CT for Lyme and co-infections, plus related treatment. This would be for myself. I have had a lot of treatment, but it has been on and off, due to many obstacles. I did best on IV abx, plus orals.
PM me, of course.
Thank you!
Posts: 3771 | From around | Registered: Mar 2008
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I saw Dr M once when I was looking for a doctor. He is personable and chatty, and the good thing is that he will prescribe herbs and antibiotics.
He told me that he thought I had a silent Babesia presentation and I thought that was a great insight.
He also told me that he thought I had the Fry bug, and tried to push the testing on me. Unfortunately I was very newly diagnosed with Lyme at the time, and I was unhappy about being pushed to have a test about some wierd bug I had never heard about let alone pay $500 for that when his fee was already high.
He also really wanted me to join some pain management program with a compounding pharmacy he had a connection with, and since one of my doctors already was giving me a compounded perscription, I felt that it was very pushy and did not like that, so did not continue to see him.
He did prescribe IV antibiotics to a woman in my local area, who was also diagnosed with ALS with Lyme. She died whilst being treated by him, so I don't know if he still does IV treatment or not. I am not sure where he is now.
One person here on Lymenet told me that he did not know what to do for her any more, and was looking to find a new doctor, so I don't know if that means anything or not.
At the time I saw him he did have a nurse practitioner so that is good, and his wife who is a DO as well, was running the practice and doing the admin work. I don't know if she sees patients now or what, but my osteopath always thought that it was a waste of her medical degree to be a secretary and thought the set up was wierd.
Dr M did have Lyme pretty badly himself and recovered so he does get Lyme!
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Thank you, oceangirl.
Posts: 3771 | From around | Registered: Mar 2008
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi Rumigirl:
I have always liked Dr. M. We saw him when our daughter first became ill as a 2nd option to Dr. J. After a few visits he didn't think it made sense to continue to see him while we were following Dr. J's treatment protocol.
We start seeing him again next week.
I know he spent time with both Dr. J of CT and Dr. H of NY and my understanding is he follows Dr. K's protocols (Washington.)
I know of one family he treated and unfortunately for whatever reason both patients had difficulty following the treatment Dr. M was prescribing so I don't think this was a Dr. M issue but more the patient issue. This sounds like the person oceangirl mentioned.
Hey we are 4+ years in now and I'm not happy my daughter is not over this but the only reason we are looking for an alternative to Dr. J is due to he may close the office at any time.
From a price point he is more reasonable than most but like oceangirl I'm not as into the alternative labs, etc.
Good luck and I hope it works out for you what ever the decision may be.
posted
OK, I have a Q. Why are you only referring to doctors by their first inital? "Dr. M"... is there a reason we cannot say their entire names here? I ask only because I am brand new to this site Thanks!
Posts: 2 | From CT | Registered: Aug 2014
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posted
littlelyme - we only use the doctor's last name initial (no full first or last names) and only the state they are in (no cities/towns can be mentioned) per Lymenet rules due to the hostile climate and politics surrounding Lyme disease treatment. We are trying to protect our heroes.
One camp (IDSA=Infectious Disease Society) says there is no such thing as chronic Lyme, but calls it a "post-Lyme infection". The other camp, (ILADS=International Lyme and Associated Diseases Society) says chronic Lyme exists and backs it up with published clinical abstracts.
Fyi - Borrelia burgdorferi bacteria (the one which causes Lyme) has actually been found in tissue from autopsied individuals even after long-term treatment with antibiotics!
Many LLMDs have been, and still are, being persecuted because they are brave enough to stand up and treat Lyme disease by giving their suffering patients long-term antibiotics. Sadly, some have lost their licenses and practices, others have even committed suicide because of this witch hunt!
This explains why you have to find an LLMD and why they are being persecuted:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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