posted
Hi, Hubby retires in 10-12 months. We want to move from the AZ heat. I have good doctors here, but still have many layers to peel.
We want to start searching for our "last" place to live based on the LLMD's we can find in Oregon (where we were born), WA State (where we lived for 22 years) and NO. California (area we like).
[I just read another person's post - NO LLMD's in Oregon due to their Med. Board. OKay - what about any LL ND's???
Maybe I am asking for too much - don't know.
Bob will be leaving this coming Friday to spent one week in Oregon searching areas. We used special Meters (ElectroSmog meters) to find areas safe for me.
Hope you can share with me LLMD's in those states. THis information will narrow our search.
THank you kindly, Deb ZERO cell phones/ towers/ smart meters anywhere this place!!
-------------------- Lyme disease, Addison's Disease, immune problems and more Posts: 9 | From Arizona | Registered: Jul 2014
| IP: Logged |
posted
Pming you -
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- While Oregon has some excellent ILADS educated LL NDs, it's hard to say you will never ever need an MD for any other medical need between now and until you are well in remission / recovery and the variables discussed below melt away.
Washington State would be your better choice for either LLMDs or LL NDs - and for other MDs (for other issues) who won't be so hostile so it would be safe to acknowledge lyme effects and treatment with others.
Or Northern California for either as well.
I would never suggest ANYONE move to Oregon unless they have the funds to see only LL NDs. No LLMD is allowed here. Lyme is not even "allowed" here (it's the official motto, it seems).
Sorry, but it is true that the Oregon Medical Board is extremely hostile against lyme. And this is forced on all MDs.
I wish I could tell you it's not true. But it is and to such an extent that is beyond belief (but I've experienced severe hostility and refusal of treatment many, many times over the years - even in 2 ERs - when not there for lyme at all but for other things).
I refused to accept it at first and tried to talk various doctors into helping me but, time after time, I was beaten down.
Even if I need an ER, I will not go (due to previous terrible experiences) -- with untreated lyme, there are just too many complications that - even if something else is wrong -- no MD in this state has the knowledge or desire to understand how lyme & other TBD can be intertwined - or safety of certain other drugs for someone with a chronic, untreated, stealth infection.
Steroids are the go-to choice and that can be (has been) disaster before I learned to avoid them. When MDs don't know about chronic lyme, they can do serious damage.
[I could only afford a couple consults, however]\
For those who can afford to just obtain medical care outside of the regular system, there are some excellent ILADS educated LL NDs (naturopathic doctors) -
-yet if any other kinds of doctors are ever needed for your treatment, and if lyme is in any way connected to any symptoms or compromises Rx for other things, forget it - doctors won't know what you need them to know.
And anyone who mentions lyme is deemed a "difficult patient" and doctor-patient relationship (even for other issues) goes downhill from there.
There have been a few "simple" cases and a few have gotten lucky here with a very short mono-treatment working for them (or at least at first). If they just happened to find a willing doctor.
But there have also been even more turned away at the start (even with bulls eye rash & symptoms), even before it has become chronic. But for a chronic case, not a chance of finding any MD who is up to speed. The director of the medical board has a heavy IDSA influence in the state.
Talk to support group leaders for current lay of the land.
[ 09-01-2014, 01:39 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sent PMs with a couple Portland area LL NDs (and they will know of those elsewhere in the state, too) -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Be sure to contact support groups for information. Check Facebook also.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The author here is not clear but the detail is as I and many others have found it to be true. Even a doctor who may want to help, can't risk it
- and I've been told that by at least two doctors who said they wished they could help in at least some way but could not -- so don't think you will be able to "talk" any other kinds of doctors into anything at all about lyme.
Oregon's otherwise highly praised premiere medical college, OHSU harbors a very dark secret - on every single level about lyme - will deny, ignore and shame those who seek answers or care.
And this may be fine as long as you never wind up there for any reason at all (and lyme could still influence anything at all about your body - or if treatment from elsewhere needs to be understood & considered as part of the big picture).
Pharmacists have also been know to report on MDs who try to treat lyme beyond the IDSA strict notion. Those doctors are no longer allowed to be doctors now.
. . . As a little background, MD's that treat Lyme beyond the IDSA guidelines are very exposed to legal problems in Oregon.
Oregon law actually requires a physician to report a colleague to the medical board if that colleague (physician) is putting the patient's health at risk.
Since the official stance of the IDSA is very limited treatment and anything beyond this is non-warranted and potentially puts the patient at risk, between this IDSA position and the Oregon law, doctor's treating outside this are very vulnerable legally. . . . -
[ 09-01-2014, 03:01 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Deb,
Sorry, I missed this part earlier. So Portland area would be out of the question.
While needing to locate a LLMD (WA or N.CA) or LL ND (WA, N.CA, or OR), it seems they can be a little bit of a drive and that the main concern with where you reside is:
"ZERO cell phones/ towers/ smart meters anywhere this place!!"
You say your husband is in Oregon now with "special Meters (ElectroSmog meters) to find areas safe" for you.
I assume some preliminary web searches to locate those has been done. Also be sure to check (word loss) town, city, county PLANS for the future with cell phones and smart meters.
Solar power companies may be good to contact. They'd know who else may be going independent - or what locales are best.
The LL NDs offices may have some good clues for you and understand the importance of your search. -
[ 09-01-2014, 03:47 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Deb,
You mention Addison's. It often is a result of lyme, as you likely know (and with proper lyme / TBD treatment & support the adrenals can often heal or at least have less stress).
Detail below may be of help, especially the Cortef links, the safe physiological replacement dose of hydrocortisone.
Especially in Oregon, be very careful with any MD who wants to prescribe strong steroids for Addison's. I suspect that is just one reason you seek a LL doctor, it's just that I've seen some get all kinds of steroids with no thought about lyme and it's not worked out well for them.
A LL ND would surely be the best to consult - someone who knows how much herbs / supplements / habit / infection treatment can do and if or when Rx steroids need to be on board (and they may well be required) -- and if so, the proper kind and dose.
See the "Steroid" caution link in the set below for explanation of my concern (You may well know all this but it's hard to know, so posting just in case.)
Feel free to post any other questions you may have in either the Medical or General forum for discussion or suggestions.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic