posted
Hello. I have Lyme & I am sure now that all my sons chronic & serious health problems are because I passed lyme to him. I've shown up with two positive tests on Western blot and Bart but he's not showing up. I live in Austin Texas and wanted to reach out to find out who the best pediatric LLMDs are in the US or even here in Texas. I understand there is/was a Dr W.
I am only seeking highly experienced doctors who use the latest protocols and go to the conferences. Totally willing to go out of state so please provide more than Texas that are Pediatric LLMDs. My son is a very complicated case as he also has CRPS/RSD.
posted
Welcome to Lymenet! PM sent with some suggestions.
You did not mention how old your son was, but he needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
They are far and few between, unfortunately. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner to see a LLMD by doing this.
Btw - please break up your posts into 2-3 sentence paragraphs,as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
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