posted
I am looking for a LL dr. Near me but i am willing to travel. I just want to quit being sick for the last year and dr after dr telling me nothing is wrong. ive lost 30lbs in a year and still dropping! All tests for everything including lymes are negative. i have finally resorted to this, Posts: 2 | From Minneapolis | Registered: Nov 2014
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
They are far and few between, unfortunately. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
The Mn Lyme Association meeting is next Tuesday November 11th.
There should be many people there because they are having a guest speaker.
Let me know if you are planning on going and I can look for you.
Meetings are held the 2nd Tues of each month White Bear Lake District Center 4855 Bloom Avenue White Bear Lake, MN 55110
Posts: 448 | From minnesota | Registered: Feb 2010
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posted
All my tests were negative, can i go? What do these meetings do ? Sorry this is all new to me and im reading "why cant i get better" now Can lymes cause adrenal problems like addisons? Ive been reading non stop trying to read as much as i can on this disease
I also know it is a huge controversy because my husand had lymes few years back and luckily he got better
Posts: 2 | From Minneapolis | Registered: Nov 2014
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Mandy,
Yes, lyme can cause Addison's and other adrenal dysfunction. Very much so.
yes, you can go to the meeting next week. What do these meetings do? Inform, educate and connect.
PLEASE go for you will be able to connect with others who have been where you are who can answer many questions.
Find out if there is to be a speaker at the meeting or the focus so you know how much time there will be for "sharing" or Q & A.
As you read "non-stop" -- do stop for mental health breaks often. This can be very tricky to learn what you need while also staying balanced.
you will not learn all you "need" to know for a while, so that is why it's vital to connect with others. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Posted above by hopingandpraying - just wanted to "ditto" it. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- While discussion is best directed to the General or Medical forums, since you say all your tests are negative (and seem to wonder how that might leave you out in the cold even if you just want to learn more to best determine what's really going on) . . . key detail to help you sort this out:
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. -
[ 11-04-2014, 05:16 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Again, discussion / questions best to direct to the other forums. But since you asked about Addison's I wanted to be sure you have this:
As treatment for Addison's usually involves various hormones / steroids, and such can be important to sustain life. Required. But it's a long way from needing support, physiological replacement levels and beyond that.
Often, if lyme is the cause, trigger, or even secondary stressor, when lyme is treated, the adrenals can heal.
But, in the meantime, if Addison's is a clear matter (regardless of the cause), it is of utmost importance that if you have lyme - or COULD have lyme - to have this detail -- and why it's best that LLMD or LL ND be the doctor to guide you to the best endocrinologist who would also be LL (a very rare combination)
posted
Yes, you can test negative for Lyme and have it. These stealth organisms morph from spiral-shaped to cyst form into cell-wall deficient types. That is why Lyme disease is a clinical diagnosis made by an experienced LLMD.
Support groups will give you a forum for asking questions, discussing things as well as learning more information, etc.
Yes, research all you can. Lymenet is an excellent source of information.
Lyme can cause all sorts of problems. My son now has adrenal fatigue from it (not Addison's) which we have recently started treating.
Posts: 8981 | From Illinois | Registered: May 2006
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ive lost 30lbs in a year and still dropping! All tests for everything including lymes are negative. 
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