posted
**Please read this post regarding contacting ILADS which was written by a very knowledgeable poster on Lymenet:
"Just want to warn you that ILADS knows nothing about the doctors whose names they give out. They will give out the name of any doctor who wants his or her name given out.
It doesn't mean the doctor is good or even that the doctor believes in chronic Lyme or believes that a person can have Lyme and have a negative Lyme test. It is simply a referral service operated by ILADS. They treat all doctors equally.
So, this is NOT a good way to get a doctor's name. Many have gotten lousy doctors this way and come on this board and complained about it. I have heard that ILADS is now aware of the problem, but they don't know what to do about it.
So, you need to get input from other Lyme patients and Lyme support groups about any doctor who is recommended by ILADS. You can post in "Seeking a Doctor" forum using just the first letter of the doc's last name and the state.
Or, you can call all the Lyme support groups near you. See Support Groups on the left side of the Lymenet page.
When you contact the support groups, ask them what doctors they recommend and who is having success curing patients.
You must do a lot of research before going to a Lyme doctor. No sense learning the hard way. Don't want you to waste your time and money.
New folks often don't know that they need to do a lot of work up front before picking their first Lyme doctor. So, they often pick a lousy first Lyme doctor.
We can help you avoid such a mistake."
Posts: 8981 | From Illinois | Registered: May 2006
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posted
You could screen the LLMD from an ILADS referral by asking first before meeting them if they follow ILADS protocol. That might help. I send people those links all the time in my FB group. I will add a note of caution. That makes sense.
Posts: 154 | From Boston | Registered: May 2014
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Check your messages, as I sent you the ones that accept insurance.
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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