I was Dxed with Lyme yesterday. I must have gotten it when I as a child, because I dont remember being bitten by a tick since then.
I do remember feeling sick and chronically fatigued for a long long time. I also have Aspergers, MCS, food and environmental allergies,MTHFR 1298, adrenal fatigue and hypothyroid.
My functional doctor, DR. E, wants me on doxycycline, methyl B12 shots, D3, Orthobiotic, L-lysine, Igg 2000, Hist-DAO, and Neuroprotek.
I know nothing about Lyme and Im not sure if Dr. E would be the best doctor for this. Plus he is very expensive.
Im pretty depressed, but Im fighting it to come on here and try to do the best job I can to take care of myself.
Thanks
-------------------- bonnie Posts: 13 | From New York | Registered: May 2015
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
Unfortunately, LLMDs are far and few between. You need to go where they are. I don't know what part of NY you are in and I only have names for upstate NY.
Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:
I suggest you write a new post in "Medical Questions" with all the information you put in this post. Have the title be "Newbie - Need Advice". Other Lymenet members will come along and gladly help you.
Posts: 8981 | From Illinois | Registered: May 2006
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posted
Hi Bonnie, I just joined here as well. Was dx last month.
My sister insists that my son has mild Aspergers, but I think it could possibly be gestational Lyme. His wife and my granddaughter have MTHFR, but my d.i.l.'s Nd only has her on two things...folate (NOT folic acid) and another thing I can't remember.
I don't know of any doctors in NY, but I'm sure someone here will be able to point you in the right direction.
Wow listen to me, I am NO help at all! I may not have the facts you need, but I just wanted to let you know that you've come to a great place here, and that you WILL get through this.
I may have had Lyme for 32+ years, and only now found out -- and if I can get through this, you can too, 'cause I may well be the world's biggest whiner!😨
Hang in there and hang out here, and don't give up!
-------------------- Bless the Lord, oh my soul. -- Psalm 103 Posts: 102 | From WA | Registered: May 2015
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posted
Thanks for the PM hoping and praying! And thanks for the encouragement LymieLoo. Lol! My 6 year old has been Dxed with Aspergers and it was told to me through a blood test that he does have gestational Lyme. Yes, you need the B vitamins that are already methylated since MTHFR has methylation problems. Maybe magnesium was the other one?
Happy to meet you worlds biggest whiner, Im worlds second biggest whiner! lol!
-------------------- bonnie Posts: 13 | From New York | Registered: May 2015
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I may not have the facts you need, but I just wanted to let you know that you've come to a great place here, and that you WILL get through this. 
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