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I Am looking for llmd who is familiar with alternative protocols
I was seeing a Lyme friendly primary who treated me for a few months with doxy didn't really get much better but he doesn't want to treat me anymore because my liver enzymes were elevated and finally normalized once i took a 1 month break. My liver enzymes have been elevated since my symptoms started so i personally feel the Lyme was messing with my liver he is afraid that once i restart antibiotics my liver enzymes will again increase so he wants me to see a specialist who has more expertise and options at his disposal which i am glad about because i was not really getting better with him.
He recommended i see dr. H but from what i see he is very expensive and has very long waiting list i am looking for an alternative who can help me and is familiar with alternative protocols just in case my liver can't handle antibiotics
I have a Lot of neurological symptoms such as head pressure, tingling in head, whole body vibrating constantly, balance issues eye twitching, numbness on face, eyes feel. Numb foot numbness, arms numb, muscle twitching, leg pain and numbness along with some physical symptoms such as Ankle pain, leg cramps pain my worse symptoms are my balance and the body vibrations and head pressure with tingling sensations in head,
Anyone familar with dr. S in ct i hear mostly good about him and he is reasonable i hear but was wondering if he is familar and open to alternative protocols
Posts: 2 | From Ny long island | Registered: Jun 2015
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease and its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
I don't know of a Dr. S in CT. Contact the CT Lyme Support Groups I listed below. They would know better.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 9020 | From Illinois | Registered: May 2006
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