LymeNet Flash: Still looking for LLMD in Upper Penisula of Michigan and or Wisconsin

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Still looking for LLMD in Upper Penisula of Michigan and or Wisconsin

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Topic: Still looking for LLMD in Upper Penisula of Michigan and or Wisconsin

William Quackenbush
Junior Member
Member # 45850

posted

Still looking for a LLMD in the Upper Peninsula of Michigan or Wisconsin. Also wondering if going to Mayo or Marshfield Clinics would be of any help. Been diagnosed now with dermatomyositis,before that polymyositis, Mixed connective tissue disease and undifferentiated tissue disease. Right now I am on prednisone to calm my high muscle inflammation. HELP [bonk]

Posts: 8 | From Copper Harbor, Michigan 49918 | Registered: May 2015 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

I don't know of any in the UP.

PM sent for a good LLMD in northern WI (not upper peninsula of WI). I think I already gave you his name before. You will have to travel.

Have you contacted all the MI Lyme Support Groups I sent you, especially www.mlda.org? Here they are once more:

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MichiganLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
www.lyme-aware.org/michigan.html
www.mlda.org [Contact Linda at (888) 784-5963]

http://www.lymenet.org/SupportGroups/UnitedStates/Michigan/

The consensus on Lymenet is "Hold the Mayo!" They do not have any LLMDs on staff.

Here are some links for you to read about Mayo:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/18671?#000000

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/19512?#000000

Steroids are contraindicated for Lyme, because they suppress the immune system and cause the disease to get worse. Read this link for a very good explanation:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=132021;p=0#000000

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

William Quackenbush
Junior Member
Member # 45850

posted

Thank you very much. Just tired of going from one ologist to the next, more tests. They say it is an autoimmune issue. I am taking prednisone for my muscle inflammation that they cannot pin down the reason for it. It is a scary road going nowhere

Posts: 8 | From Copper Harbor, Michigan 49918 | Registered: May 2015 | IP: Logged |

William Quackenbush
Junior Member
Member # 45850

posted

Is Marshfield Clinic in Wisconsin worth a try or are there no LLMDs there either?

Posts: 8 | From Copper Harbor, Michigan 49918 | Registered: May 2015 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I sent you some info.

In case this is your real name:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/11844

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

I have not heard of Marshfield Clinic and am not aware of any LLMDs there. I did google the name and the reviews I read were not good ones.

The MI & WI Lyme Support Groups would know better about their states.

The LLMD in northern WI is a good one and has helped many get better. He would definitely be worth the trip, albeit long. Many Lyme patients do travel far to get the right treatment.

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

William Quackenbush
Junior Member
Member # 45850

posted

Thank you all for the info. I really appreciate everyone's help.

Posts: 8 | From Copper Harbor, Michigan 49918 | Registered: May 2015 | IP: Logged |

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