LymeNet Flash: Seeking LLMD around Syracuse/NY

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD around Syracuse/NY

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Topic: Seeking LLMD around Syracuse/NY

Simasyr
Member
Member # 46741

posted

Hi
I am looking for LLMD around Syracuse/New York. My 4 years old daughter just diagnosed with Lyme disease. Her pediatrician referred us to Infectious disease doctor at our local children's hospital. Our appointment is going to be on 15th. But I want her to be seen by LLMD. If you know anyone please let me know.
Thank you so much!

Posts: 10 | From Syracuse | Registered: Oct 2015 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for upstate NY.

Your dear daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

Stay away from Infectious Disease doctors. They think one dose of antibiotics is enough to treat Lyme and that chronic Lyme doesn't exist.

Read about the controversy regarding Lyme Disease and its treatment:

http://www.clinicaladvisor.com/features/controversy-continues-to-fuel-the-lyme-war/article/117160/

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems form Lyme. Thanks.

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

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