LymeNet Flash: Seeking LLMD recommendations Washington state

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD recommendations Washington state

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Topic: Seeking LLMD recommendations Washington state

Jewelfire
Junior Member
Member # 46170

posted

Hi everyone,

Looking for the scoop on Lyme doctors in the Seattle area or nearby -- not just names, but feedback on who's good. Ready to go IV, have been having a hard time finding a doctor both knowledgeable and caring. Can't be too much to ask, right?!

Wishing us all the healing we need,

JF

Posts: 7 | From western US | Registered: Jul 2015 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Check with Bastyr Naturopathic University, ask specifically for their suggestions of any ILADS educated LL NDs (naturopathic doctors) but also for any LLMDs as they often work together.

Make it clear, though, that you are seeking not just who may be connected with them but also who they might recommend outside. I know of at least one excellent ILADS educated LL ND who used to be on faculty at Bastyr but think she now is in private practice.

Bastyr has a clinic so you may be able to get some parts of treatment at lower cost, though, only a small percentage of their clinic staff would be LL, so don't assume they all are across the board.
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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You might connect with the online support for Washington state through:

https://groups.yahoo.com/neo/groups/WashingtonLyme/info

Washington state - Lyme Disease.org
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for WA.

Your best bet would be to contact the WA Lyme Support Groups listed below - they would know better.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/WashingtonLyme/info

Maybe they can help.

Some more resources (including Support Group info):
www.lyme-aware.org/washington.html

http://www.lymenet.org/SupportGroups/UnitedStates/Washington/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

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