posted
Currently being treated for RA past two years, but strongly feel it is misdiagnosed. On methotrexate and humira. Symptoms are getting worse. moved from MN one year ago.
-------------------- AER Posts: 2 | From Dallas, TX | Registered: Nov 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Texas is not a great place to find a good lyme doctor. Texas threatens its lyme doctors and gets them to move or stop practicing without notice. Then, if they start up again a year or so later, they do it to them again. So, there really are few lyme doctors there and no top notch ones.
Because of the sorry state of affairs in Texas, Many folks from Texas are coming to the D.C. area for testing and treatment for lyme disease and it coinfections.
If you would like the name of the doctor I am sending them to, just let me know. Everyone is very happy with him.
I can send you many happy patient reports. He follows the Burrascano protocol. If you are not familiar with that, it is here:
It is at the top of Medical Questions forum on LymeNet.
Burrascano was the lyme disease pioneer and the #1 lyme doctor in the world before he retired a few years ago. They came from every country on the globe to be treated by him.
The doc I recommend can see you in a few days. Let me know.
I don't think you would regret it. After the first in person visit, you can do telephone or Skype appointments with him monthly. So, there would be little travel involved.
At least half of all lyme patients travel out of state for their care. Good lyme doctors are just few and far between.
The doc is the key to the diagnosis and for getting rid of this horrendous disease. I can't emphasize that enough. The doc is the key.
This is what I wrote to another Texan in Sept. Look at the following thread to see all of our discussion:
posted
Look into oxalates in foods causing RA pain.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I have a friend who was diagnosed with RA. Her hands swelled up like balloons. The diagnosis was correct.
However, I took her to an integrative medicine doctor and he tested her for food allergies and put her on some anti-inflammatory supplements.
By avoiding the foods she is really allergic to, she now has no more RA symptoms. She is very happy that she didn't do what the rheumatologist told her to do.
I told her about the Road Back Foundation for antibiotic treatment of RA. She was willing to do that with the integrative doctor. However, with diet changes, it has not been necessary in her case.
She is one happy camper.
So, you also may want to get names of doctors from the Road Back. They are on the Internet. These are docs who believe RA is an infection and can be cured with very low dose antibiotics. This is how we found the doc who helped my friend.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
hello, desperately looking for a doctor in Dallas area....
-------------------- lil Posts: 1 | From United States | Registered: Nov 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
lilou, did you see what I wrote on Nov. 4 about the difficulty in finding a doctor in all of Texas?
Can you travel to other states to get good care?
Also, you really should start your own new post to get the attention of folks on this site that you have a new request for a doctor.
Find "Post New Topic" near the top of the screen and click on that. This way, more people will see your request.
Welcome to LymeNet!
Posts: 9931 | From Maryland | Registered: Dec 2007
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
I live in TX and had to/do travel out of state to get treatment. I don't have the funds, but I don't want to live in misery. I wish I had better news to give you. Wishing you the best.
Posts: 1431 | From USA | Registered: Mar 2015
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posted
Dieseldog - Welcome to Lymenet! PM sent for TX & MD.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
posted
lilou21 - Welcome to Lymenet! PM sent for TX & MD.
You should write a new post instead of adding on to an existing one. That way, more people will see it and respond, because most don't re-read old posts.
Posts: 8981 | From Illinois | Registered: May 2006
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