LymeNet Flash: Seeking llmd in NY state

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking llmd in NY state

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Author

Topic: Seeking llmd in NY state

Rodeodancer
Member
Member # 47623

posted

Hello all,
I'm looking for treatment in NY state.

Thanks,
Rodeodancer

Posts: 26 | From - | Registered: Mar 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

In order for anyone to send you information, you need to enable receiving private messages (PMs). Click on "My Profile", check the box under "Your Preferences" which says "Enable Private Messages", then click 'Update Profile".

It's good to also check that you want to be notified by email when someone sends you a private message.

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

Rodeodancer
Member
Member # 47623

posted

Sorry about the settings, I've set PM as suggested.

Thanks Rodeo

Posts: 26 | From - | Registered: Mar 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for upstate NY, PA & OH.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

[ 03-14-2016, 01:51 PM: Message edited by: hopingandpraying ]

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

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