I'm new to the site and forum and this is my first post, so please excuse me if I'm in the wrong place!
I'm a 35-year-old male and I've been experiencing several distressing symptoms for close to two years (too many to list here, I will pass them on if requested). The variety, frequency, and seemingly random nature of the symptoms are very concerning. While I haven't been diagnosed with Lyme, my symptom list grows on almost on a daily basis and it sometimes feels like I'm losing my mind! My search has lead me to believe that Lyme may be the answer, so I'm hoping someone can help.
I have been passed around to different physicians in my area and most everyone scoffs when I bring up my symptoms and the possibility of Lyme. One nurse practitioner agreed to order a Lyme test (which came back negative -- to be honest I'm not sure exactly which test was ordered), but I'm learning that a false negative test can be common. I'm looking for an LLMD in Michigan, if possible, but I'm willing to travel regionally and look elsewhere in the state/Midwest if necessary.
Thank you for your time, it is greatly appreciated.
Regards, alemicham171
Posts: 2 | From U.S. | Registered: Mar 2016
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posted
Hopefully someone here will help you with names of LLMDs near you.
I tested negative on standard two-tier testing for decades. When I finally was tested by IGENEX it was positive, altho still "CDC-neg."
Get thee to a LLMD and get tested by IGENEX.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
I know you are new to Lymenet, but you should write a new post instead of adding on to an existing one, so more people will see it and respond. Most don't re-read old posts.
PM sent for MI.
Posts: 8981 | From Illinois | Registered: May 2006
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