LymeNet Flash: Connecticut Lyme Doctor References

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Connecticut Lyme Doctor References

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Author

Topic: Connecticut Lyme Doctor References

questing123
Junior Member
Member # 47771

posted

Hello,

I'm seeking references for a LLMD in Connecticut for my mother, who lives in Litchfield, in the northwest corner. References in eastern NY or western MA would also be appreciated. She is 73 and having mental issues at this point, becoming unable to seek an LLMD on her own.

Thank you on this site for helping others, despite the challenges on Lyme et al.

Posts: 1 | From asheville, nc | Registered: Apr 2016 | IP: Logged |

paulieinct
LymeNet Contributor
Member # 17514

posted

I sent you a pvt. message.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for CT.

Your dear Mom needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. She needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

[ 04-19-2016, 11:39 AM: Message edited by: hopingandpraying ]

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

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