LymeNet Flash: seeking llmd in pa

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » seeking llmd in pa

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Topic: seeking llmd in pa

Aries327
Member
Member # 3757

posted

Hello all long time no see well now my son has come down with lyme in honesdale pa

he is going through the stomac problems throwing up constantly head ach and crash sleeping for hrs on end

he needs to find a llmd that's in the area

anyone that can help feel free to contact me at rowett at warwick net and I will give him the info and try to help him personaly

I believe the only way is with iv but its hard to get drs to do that in pa

I,m in jersey so its much more exceptable at this point anyway

thanks for your time

Tim

.............................................

(breaking up the post for easier reading for many here)

[ 04-18-2016, 02:40 AM: Message edited by: Robin123 ]

Posts: 58 | From vernon,nj | Registered: Mar 2003 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

Up for referrals -

Aries - people may also send you a private message here - when they do, you'll see a flashing message you can click on, and respond to the person.

When you click on My Profile at the top, you'll see your messages.

Posts: 13171 | From San Francisco | Registered: May 2006 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

I have been trying to send you a PM for several days now with information, but still cannot. Whenever I try, a page with "Lymenet Being Upgraded" comes up and my message just will not go through!! Very frustrating!!

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet!PM sent for PA & MD.

You didn't mention how old your son was. This is important to know in order for us to know which LLMD's info to send you, because some doctors only treat adults, others only children, while others treat both adults and children.

We also communicate via PMs (Private Messages), not e-mail. I would recommend you remove your personal e-mail address from your post, because this is a public forum with all sorts of people on it.

Also, you should break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. To do this, click on the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lymepa.org

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

[ 04-19-2016, 10:47 AM: Message edited by: hopingandpraying ]

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

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