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Author
Topic: Seeking Lyme literate doctor in NEW YORK (NYC or westchester county area
Bernard123
Junior Member
Member # 47839
posted 04-17-2016 03:12 PM
Hello, I'm approaching 2 years of Lyme disease symptoms. I've been treated by a couple doctors without any positive results. I'm now searching for a true Lyme disease specialist. Ideally the doctor would bein the New York City or westchester county area and take insurance, but I'd be open to other options as well. Does anyone have any recommendations? Thanks in advance [ 04-18-2016, 06:50 AM: Message edited by: Bernard123 ]
Posts: 1 | From New York, Ny | Registered: Apr 2016
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hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256
posted 04-17-2016 09:46 PM
Welcome to Lymenet! PM sent for CT. You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment. Here is a link for them: http://www.lymenet.org/BurrGuide200810.pdf LLMDs are far and few between, unfortunately. You need to go where they are. Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance": http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0 When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this. Check the online state Lyme groups at: https://groups.yahoo.com/neo/groups/NewYorkLyme/info Maybe they can help. Some more resources for you (including Support Groups info): http://whatislyme.com/websites-and-support-groups-by-state/ www.empirestatelymediseaseassociation.org http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/ The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information. Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon. View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/ Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks. [ 04-19-2016, 10:49 AM: Message edited by: hopingandpraying ]
Posts: 8981 | From Illinois | Registered: May 2006
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