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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Virginia LLMD

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Author Topic: Virginia LLMD
Solidarity
Junior Member
Member # 48675

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Hello, I'm posting for two friends.

My best friend's mother was just diagnosed with ALS but given the nature of her summer employment for the past 15 years (working at summer camps in an endemic state) Lyme seems quite likely.

She lives in Northern Va near Winchester/Stephens City.

Additionally my BIL has had ongoing chronic health issues that remain undiagnosed. He had asked me to find a holistic doctor and asked for any other suggestions I might have in general as I used to live in the area.

It has occurred to me that the possibility of Lyme has never been looked at for him. That would be a doctor near Arlington, VA. I think there might be a doctor in Vienna, VA as Google has pulled up mentions on other sites.

So this may fit the bill for both of them. TIA

[ 09-02-2016, 11:23 AM: Message edited by: Solidarity ]

Posts: 2 | From Ohio | Registered: Sep 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for VA & MD.

Your friends need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. They need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/VirginiaLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Virginia/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do that, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posts: 9020 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
yancync
Member
Member # 46999

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Hi,
I sent you a private message with some suggestions. Good luck!

--------------------
Parent of teen with late stage Lyme, mycoplasma, bartonella and babesia. Dx Nov '15, in remission early to mid '18.

Started site for parents looking for Lyme/tick info: www.ParentsofLymeKids.com

Posts: 33 | From Northern VA | Registered: Nov 2015  |  IP: Logged | Report this post to a Moderator
   

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