LymeNet Flash: NEED LLMD IN NORTH CAROLINA ASAP

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » NEED LLMD IN NORTH CAROLINA ASAP

UBBFriend: Email this page to someone!

Author

Topic: NEED LLMD IN NORTH CAROLINA ASAP

JRB
Junior Member
Member # 48784

posted

Hello,

My 19 year old son has just been diagnosed with Infectious Mononeucleosis (Monospot/EBV) and Lyme disease (IgG, IgM and Western Blot positive; ANA 1200 smooth pattern).

The lab reports indicate the EBV can cause false positive results for the Lyme and ANA and I only want to do what is best for him. He needs someone who can help us determine if he actually has Lyme and whether acute or chronic; if there are co-infections (he has not been tested); and if the recommended treatment is sufficient.

There are no Lyme literate docs close, but we will travel.

Thank you for any and all help!

JRB

Posts: 1 | From North Carolina | Registered: Sep 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for MD.

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NorthCarolinaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):

http://whatislyme.com/lyme-in-north-carolina/

https://www.facebook.com/pages/NC-Lyme-Advocacy/290956021030771

http://www.nclyme.net/

Here are a couple of links about Lyme and children with very good information:

http://www.childrenslymenetwork.org/

https://sites.google.com/site/drjoneskids/home

Links about teenagers and Lyme Disease:
https://www.lymedisease.org/45/

http://www.livingwithlymedisease.org/teenagers-with-lyme-disease.html

http://www.lymefight.info/lyme-disease-general-information/children-teens-and-lyme-disease/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

TF
Frequent Contributor (5K+ posts)
Member # 14183

posted

I sent you a name and lots of good information. Good for you for asking for a doctor here. And, good for you for being willing to travel.

To get an accurate diagnosis, get to the best lyme doctor you can possibly afford. You are paying for expertise. So, you want to get it right. Lyme is not easy to diagnose and definitely not easy to treat or cure. Same goes for the lyme coinfections (other diseases that you get right along with the lyme).

Welcome to lymenet! We will help you here all we can.

Posts: 9931 | From Maryland | Registered: Dec 2007 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/