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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Central Florida LLMD question

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Author Topic: Central Florida LLMD question
danielj
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Member # 7795

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Is anyone seeing or has anyone seen Dr. R? He is now in Lakeland, but used to be in Clearwater. I have an appointment with him in September, but I want to get some feedback about him.

This will be the first visit my wife and I are making to a doctor to specificaly address Lyme. My wife has been suffering from 'thyroid problems', 'depression', etc. that have been getting worse for years. She has been on thyroid/adrenal support drugs for about a year now but things are only nominally better.

I strongly suspect that I gave her Lyme through sex (we have been together for 9 years - I grew up running around the woods in Pennsylvania and New Jersey and I know I pulled ticks off me as a kid).

I have had some strange health issues over the years, nothing too major but things that just didn't add up. However, about 2 years ago, we were at a wooded beach (Ft. Desoto) and a few days later I got the classic bullseye rash, which lasted for about a month.

I didn't know anything about Lyme, and just ignored it, figuring it was eczema or something. But starting about a year ago, my 'strange health issues' started getting worse, and there have been a slew of new symptoms.

The worst has been a steadily increasing fatigue that is debilitating. I went to a shrink who tried me on meds for narcolepsy, depression, etc. and now has me on Lamictal for bi-polar. But of course it is not helping much. I got an MRI and an EEG, but the neurologist told me up front he didn't believe it was Lyme, and the MRI and EEG confirmed it for him.

I have been to several other doctors down here in Florida, and none of them believe it could possibly be Lyme (this is the state where Wyatt Sexton's insurance company is refusing to pay for his Lyme treatment from what I have heard).

I even went to an ID doctor who put me on 150mg a day of doxycylcin for 2 weeks, basically to humor me.

I hate the feelings of self-doubt that I am experiencing. I don't want to believe that I am a hypochondriac or that this is all in my head.

But on the 'Symptoms of Lyme Disease' checklist from www.canlyme.com/patsymptoms.html, I have/had, in varying degrees, 37 of the symptoms plus 7 other items that I wrote down that seem to fit the profile. My wife has a similar number, with a different range of symptoms (some overlap of course).

Meanwhile, it is only my pure stubborn pigheadedness that keeps me going and functioning every day.

All of my research over the last 4 months or so keeps pointing to Lyme as the culprit.

I would *love* for my wife and I to be able to spend a full day being awake and clear headed again!

Does anyone have any other recomendations, comments, suggestions, etc. about Florida LLMDs?

Thank you for your time and support.

[This message has been edited by danielj (edited 25 August 2005).]


Posts: 2 | From St. Petersburg, FL USA | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
mbroderick
Frequent Contributor (1K+ posts)
Member # 5220

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Check your email.
Posts: 2097 | From PA | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
danielj
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Please, does any one have any comments, positive or negative, about any Florida doctors?

My wife and I are in a desperate place now. This illness is affecting our relationship as well as our health, and I really want us to get well.


Posts: 2 | From St. Petersburg, FL USA | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
givenlymemakinlymade
Junior Member
Member # 7818

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hi ! I ma brand new to this - I'm in Litchfield county CT> and design gardens onlarge estates - LOTS of meadow, woods, and TICKS!
Irecently ewas dignosed with IGm and IGG ( sp? ) bands positive - for the third time -
anyone ever hearof Dr. Zane Saul , the chiefof infectious diseasesat Bridgeport hosptal?
I would love any other recommendations for a DR> anywhere in CT> and westchester NY or western MAss.
thanks!

Posts: 1 | From Pleasant Valley , CT USA | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
David95928
Frequent Contributor (1K+ posts)
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Daniel, check your e-mail. David
Posts: 2034 | From CA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
trueblue
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I've send you an email as well in case the other's don't pan out. good luck!
Posts: 3783 | From somewhere other than here | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
kayaker
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Hello Daniel -- Can relate very much to your journey and have sent you a message with a Lyme Lit Doc name that helped our family. Good Luck and remember that you are not alone and that there really is hope and help out there and proper diagnosis with treatment. Denise
( miamilady and Kayaker)

--------------------
Reach for the ocean -
it's just past the brook


kayaker or miamilady

Posts: 21 | From Placida Florida | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
   

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