LymeNet Flash: Florida LLMD needed but willing to travel

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Florida LLMD needed but willing to travel

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Topic: Florida LLMD needed but willing to travel

KRN1967
Member
Member # 50550

posted

Thank you so much for this forum! I've learned so much here already!

I am a 50 year old female recently diagnosed with Lyme and Babesia by Igenex lab test after negative Western Blot. I am finishing 3 weeks of Doxycycline that the PA that tested me was willing to prescribe, but now need to find a LLMD to continue treatment with.

I am willing to travel, preferably staying in the eastern US or Midwest.

Thank you!

Posts: 11 | From Florida | Registered: Jun 2017 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Hey to you in sunny Florida! Welcome to LymeNet!

So glad you are being pro-active NOW, rather than later. Good for you!!!

You can go to www.FloridaLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in Florida and other states.

Hope that helps! Good luck to you!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

KRN1967
Member
Member # 50550

posted

Thank you!

And, thank you, again for all you do!

Posts: 11 | From Florida | Registered: Jun 2017 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for FL, MD & DC.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between, so you need to go where they are. At least half of all Lyme patients go out-of-state for proper care.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/FloridaLyme/info

Maybe they can help.

Some more resources (including Support Groups):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Florida/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

You are very welcome!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

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