posted
Welcome to Lymenet! PM sent for PA, DC, & CT.
Here are some quotes from old posts about NJ:
"There are NO good LLMD's in NJ. NJ is a wasteland of bad docs. I can tell you from years of experience, unless you go with an established doc (of which there are only a few on the east coast) you will get under-treated and continue to relapse.
PLEASE TAKE MY ADVICE. NJ is a bad place for ticks and a bad place for tick doctors."
"The LLMDs in NJ are not very good based on patients' experiences. People start with them then end up going to see other LLMDs out-of-state."
"Over the years, the folks in New Jersey have said that the best Lyme doctors are not there."
"I strongly suggest that you be willing to travel outside of New Jersey to get good treatment."
"There are Lyme doctors in the area you have named, but I don't recommend any of them. To get a good Lyme specialist, you will have to be willing to travel. At least half of all Lyme patients go out of state for their care."
Your son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Sorry, I don't PM. But here is what I can offer.
You can go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states that have them.
Most will not take insurance, but if you check around you might find someone that does.
Good luck to your son! He's lucky to have someone like you that cares.
posted
Can you also pm any PA,NJ,NY pediatric llmds? Seeing a non-peds llmd in NJ now and not very impressed.
Posts: 1 | From New Jersey | Registered: Aug 2017
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
The one I highly recommend is in Washington, D.C.
Let me know if you want the name. She has great credentials and reviews including with little ones born with lyme. And, she is very quick to reply to emails including on weekends and holidays.
YOu would be in good hands with her.
You only have to appear in person once every 6 months, so there would not be much travel involved.
There just aren't that many good pediatric lyme specialists.
Posts: 9931 | From Maryland | Registered: Dec 2007
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