LymeNet Flash: Johns Hopkins Lyme Research Center?

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Johns Hopkins Lyme Research Center?

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Author

Topic: Johns Hopkins Lyme Research Center?

Bluebird7
Junior Member
Member # 51488

posted

Wondering if anyone has had any experiences (positive/negative) with the doctors at this newly opened LD center. Considering having my primary care refer me there for a consult.
Thanks

Posts: 3 | From Maryland | Registered: Jun 2018 | IP: Logged |

map1131
Frequent Contributor (5K+ posts)
Member # 2022

posted

That would be the last place to go. If you are looking for Lyme Literate Medical Doctors(LLMD) this group will be able to give you names.

What state/city are you interested in finding a doctor? Are you willing to travel out of your state, to surrounding areas?

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6489 | From Louisville, Ky | Registered: Jan 2002 | IP: Logged |

Bluebird7
Junior Member
Member # 51488

posted

I live in Maryland and (like other MD residents) many of the providers whom I see are in the Hopkins system. Over the years I’ve had both good and bad Hopkins doctors.

Have you personally had a negative experience with the Hopkins Lyme Center?

I’m newly diagnosed, so I’m trying to gather information to help me decide how to proceed next. In addition to this group, I’ve joined Lyme Disease.org and intend to find a local support group.

Thanks,
Susan

Posts: 3 | From Maryland | Registered: Jun 2018 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Welcome to Lymenet Bluebird7

Granted, maybe some of the doctors at John Hopkins are excellent. BUT NOT FOR LYME OR TICK BORNE INFECTIONS.

You would be seen by an Infectious Doc.
You would have to test positive for Lyme on outdated tests that MISS up to 70% of sufferers.
You would only be treated with 28 days of antibiotics, declared 'cured' and sent home to die.

Many, many Lyme patients have voiced negative reviews and for good reason. Read ;

https://sites.google.com/site/marylandlyme/doctor-referrals-1/why-not-hopkins

http://outbreaknewstoday.com/lyme-disease-lends-itself-to-conspiracy-theories-hopkins-doctor-51668/

Do not see an Infectious Disease Doctor. ( IDSA).
You need a doctor, any doctor, that has been trained according to International Lyme And Associated Disease Society ( ILADS )

https://www.ilads.org/

Posts: 3076 | From Florida | Registered: Nov 2016 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I would personally PASS on that.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96238 | From Texas | Registered: Feb 2001 | IP: Logged |

Bluebird7
Junior Member
Member # 51488

posted

Thanks everyone for your input on the Hopkins Lyme Center.

I will certainly proceed with caution there. Since I probably have (fairly mild) Lyme carditis, I especially need to find a Lyme-aware cardiologist. I had hoped that I might find one through Hopkins, but perhaps I should look elsewhere and re-post for recommendations.

Posts: 3 | From Maryland | Registered: Jun 2018 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

OH NO! NOT HOPKINS!

Support Group & Volunteer Advocates Listings
https://sites.google.com/site/marylandlyme/md-support-groups

More Information
www.MarylandLyme.org

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

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