LymeNet Flash: Looking for Seattle, WA doctors

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for Seattle, WA doctors

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Topic: Looking for Seattle, WA doctors

Seattle Lymenmore
Junior Member
Member # 51599

posted

Would appreciate recommendations for Lyme literate MDs and NDs in Washington State (open to Oregon as well). I am looking into Dr. Klinghardt's Sophia Institute. I have many neurological symptoms and have seen 6 neurologists in Seattle and was denied by the Mayo Clinic. I have started IVIG treatment for what is turning out to be some kind of autoimmune autonomic failure started by the Lyme, but no neurologists here seem to be Lyme literate.

Any recommendations are appreciated. I need someone that can work through a web of very complex symptoms.

Posts: 3 | From Seattle, WA | Registered: Aug 2018 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for WA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

There are no LLMDs in Oregon due to the hostile nature of the OR Medical Board. Some LLNDs are there, but I don't have any names.

Try contacting the OR Lyme Support Groups. They would know better about Oregon.

Oregon Lyme Disease Network
http://www.oregonlyme.com/home.html

Support Groups in Oregon
http://www.oregonlyme.com/supportgroupsinoregon.html

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/WashingtonLyme/info

Maybe they can help. Ask them if they know of any LL Neurologists also.

Some more resources (including Support Group info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Washington/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

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