posted
I would like to give my primary Dr some information about how to treat my recent Lyme diagnosis. He’s not lyme literate. Thank you,
Posts: 1 | From New Jersey | Registered: Nov 2025
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posted
Have you been tested for Lyme and co-infections? I I would recommend telling your doctor to test you using Igenex labs.
Not only test for Lyme disease, but for bartonella, babesia and perhaps ehrlichiosis.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10236 | From Illinois | Registered: Aug 2004
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Welcome to LymeNet Nancy. (I suggest changing your screen name if that’s your real name, for privacy concerns).
Ok, so how were you diagnosed? Did you have a bull eyes rash, which is considered an automatic positive diagnosis? Or were you diagnosed by a blood test or urine test?
There are different treatment strategies for different stages of the infection.
You will need a Lyme Literate Medical Doctor (LLMD).
“ Lyme Literate Medical Doctors (LLMDs) are crucial for treating tick-borne infections because they specialize in the complexities of diagnosis, testing, and treatment of these diseases, which can often be misdiagnosed or inadequately treated by general practitioners.
Their expertise helps ensure accurate diagnoses and effective treatment plans, especially for patients experiencing persistent symptoms after standard care.
Patients bitten by Lyme-carrying ticks are often exposed to OTHER tick-borne pathogens, such as Babesia, Bartonella, and Ehrlichia, which can produce an array of additional symptoms and require additional treatments.”
Kudos for trying to educate your primary doctor but unfortunately the task of treating your infection is outside their medical knowledge. Also, experience in treating TBI’s is what you will need to get well.
Here is a symptom checklist for ALL doctors to screen ALL their patients for Tick Borne Infections. You can print this out and give to your primary.
You can read how they recommend 20 days - 4 to 6 weeks of antibiotics for early stages of this infection. A longer infection requires a multi approach with different applications.
A tick is literally a sewer of infections, bacteria, viruses, fungi, ect. These are called co-infections. A high number of Lyme patients have co-infections, so it’s important to get get tested for them in order to get well.
IGeneX is the leading provider of testing for Tick Borne Infections. (mainstream Western Blot testing misses up to 70% of cases.) IGeneX multiple immunolblot panel is recommended, and it’s currently on sale.
Feel free to post any questions you may have or search the LymeNet ‘search’ function located in the middle of the home page. It contains the most comprehensive data base from first hand Lyme patient’s experiences!
I will send a private message for NJ. Good Luck on your healing journey. 💚
These are simple e-mail formats that you fill out and they respond with LLMD’s in your area. You MUST research each LLMD referred. To do this, google for patient reviews and call each LLMD provider and ask what their treatment protocols entails.
Also contact Lyme Disease Support Groups in New Jersey. Support groups offer lots of information on LLMD’s in your specific area.
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