Some of these are simple e-mail formats that you fill out and they respond with LLMD’s in your area. You MUST research each LLMD referred. To do this, google for patient reviews and call each LLMD provider and ask what their treatment protocols entails.
These lists are not exhaustive and may be outdated. Call the doctor to see if they are taking new patients!
Lyme Facebook Groups
Lyme disease support groups are abound on Facebook. There are probably a couple hundred to choose from, including city- and state-specific forums, treatment-focused groups, and an assortment of national groups. Because people discuss the challenges they face and the symptoms they endure while living with Lyme, most groups and forums are kept on a "private" setting so others outside the group won't see what you post.
To locate a group, type a description of the kind of group you're hoping to join, such as, "Lyme disease lowa," and review the selections that pop up. When you find one that interests you, request to join it. Each group may have certain posting and privacy guidelines, but once you're a member, you can crowdsource information regarding Lyme-literate medical doctors and Lyme disease specialists who may be able to help you. Plus, you can get feedback from others about the kinds of treatments they've found beneficial.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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