-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
| IP: Logged |
Some of these are simple e-mail formats that you fill out and they respond with LLMD’s in your area. You MUST research each LLMD referred. To do this, google for patient reviews and call each LLMD provider and ask what their treatment protocols entails.
These lists are not exhaustive and may be outdated. Call the doctor to see if they are taking new patients!
Lyme Facebook Groups
Lyme disease support groups are abound on Facebook. There are probably a couple hundred to choose from, including city- and state-specific forums, treatment-focused groups, and an assortment of national groups. Because people discuss the challenges they face and the symptoms they endure while living with Lyme, most groups and forums are kept on a "private" setting so others outside the group won't see what you post.
To locate a group, type a description of the kind of group you're hoping to join, such as, "Lyme disease Virginia” and review the selections that pop up.
When you find one that interests you, request to join it. Each group may have certain posting and privacy guidelines, but once you're a member, you can crowdsource information regarding Lyme-literate medical doctors and Lyme disease specialists who may be able to help you. Plus, you can get feedback from others about the kinds of treatments they've found beneficial.
I have so much bad experience behind me, we'll see how it goes.
I am keeping an open mind and attitude.
Thank you so much for your fast and excellent help!!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
| IP: Logged |
posted
Facebook - ugh, Facebook - they locked me out and want my biometrics to get back in (maybe). I heard horror stories of folks giving them their video selfie and then still being blocked for life.
I heard this is happening to millions of users - push to get biometrics on people.
Privacy violation, big time.
Time for groups to get off of Facebook and do individual sites again. Facebook can cut people off for no reason and exclude a large number of us.
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Agree Harmony about your assessment of Facebook.
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[bow]](graemlins/bow.gif)
Miracle of miracles.![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic