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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » help..need LLMD in philadelphia area

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Author Topic: help..need LLMD in philadelphia area
jackr10
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Member # 9006

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am 24 years old have been extremely sick over the past 9 months with is what started as a lower abdominal problem (pains and diarrhea).

it has progressed since then moving up into my chest area and then the neurologic symptoms started coming... i have:

. severe muscle twitching,
. slurred speech,
. tremor,
. continued stoamch problems
. (net loss of 30 lbs),
. left leg has neuropathy
. x 6 months, i wake up nearly EVERY night with pins and needles in all my limbs (this really scares me),
. murmur (which i never had before),
. and the cold weather really bothers me (chills etc).

i have been tested for lymes 3 times (all thru ELISA--which i hear is extremely inaccurate).

My neurologist has pretty much ruled out MS (even though i have a family history of it--my mother passed away from complications of MS at the age of 45).

i have had multiple mri's all which have shown no lesions.

my ana keeps coming up positive.

also my cpk and liver function tests are very high sometimes (cpk as high as 1330).

i am so desperate right now as this sickness has taken over my life.

it consumes every part of my day, whether its scheduling md appts or just not being able to get out of bed.


my questions are as follows...

1. could this be lyme disease?

2. if so, is there anyone who knows of a LLMD in the philadelphia area? **my email addesss is [email protected] thanks much

Posts: 13 | From philadelphia | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
iceskater
LymeNet Contributor
Member # 8655

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check your private email address for information
Posts: 719 | From Delaware | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
David95928
Frequent Contributor (1K+ posts)
Member # 3521

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This sounds like it could very well, mayby probably, be Lyme Disease. If you were well before, this acute onset would tend to support that idea. What about risk factors, do you work outdoors, hike, garden, have free running pets? All of these are risk factors. Have you started reading the Medical Questions board. It can be extremely informative. There are newbie links that are kept up top.
My recommendation is that you start reading.

--------------------
Dave

Posts: 2034 | From CA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
secondtimearound
LymeNet Contributor
Member # 7249

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Jack,

Give me a call on my cell phone tomorrow. I live in the Far N.E section of Philly and may be able to point you in the right direction. You sound just like a lot of us here. After 11:30 am 267-249-6919.

All My Best,
Scott

--------------------
BTW - I am NOT a medical professional - just speaking from MY own personal experience.

Posts: 266 | From Philadelphia | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

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