posted
Hello! My daughter has begun experiencing some involuntary movements that seem to be related to a balance problem. It's like she can't stand straight and she sways/jerks back and forth to "right" herself. Very annoying for her of course, and it worries me. She has also had lots of dizziness. Anyone know a good neuro in the Baltimore-Wash. area? Thanks. PM me if you need to.
Denise
[ 02. April 2006, 12:08 AM: Message edited by: MomOfLymeTeen ]
Posts: 14 | From MD, USA | Registered: Feb 2005
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mbroderick
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Member # 5220
posted
Is your daughter currently being treated by a LLMD? If so, and if her symptoms are Lyme-related, her doctor should be able to treat for them. I'm not aware of a LL neurologist in the MD/DC area, though.
Posts: 2097 | From PA | Registered: Jan 2004
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quote:Originally posted by mbroderick: Is your daughter currently being treated by a LLMD? If so, and if her symptoms are Lyme-related, her doctor should be able to treat for them. I'm not aware of a LL neurologist in the MD/DC area, though.
Yes, Marian. We travel to CT to see Dr. J. She has been on Doxy for almost 2 years now. Joint pain is almost a non-issue at this point, and we are working with a wonderful PT to help her gain more strength and general conditioning. These neuro symptoms are new though, and a litle worrisome. She has had brain fog, etc. all along, but not all this.
Thanks for listening Denise
[ 03. April 2006, 12:37 AM: Message edited by: MomOfLymeTeen ]
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mbroderick
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I'm really sorry that I can't help you locate anyone. Have you tried support groups in all of the surrounding states? Somebody at one of them may, hopefully, know of a specialist for your daughter. I'm sure that you are extremely worried.
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HEATHERKISS
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There is an LL neuro who is in Neptune NJ if you are interested pm me.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
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Denise,
As far as I know, there are no lyme literate neurologists in the area. I have involuntary movements from Lyme myself. It is a very disturbing symptom and it has been increasing.
I understand your concern and your wanting to get your daughter to a neurologist. My guess is that your only choices will be non-lyme literate.
Does your physical therapist have any recommendations for you?
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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