-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
I really think that your best bet would be to contact any of the LLMD's that are fairly close to you, since you'd be having to visit weekly.
Also, would your doctor be receptive to teaching someone in your family how to give you the shots? That would be the easiest solution!
Posts: 2097 | From PA | Registered: Jan 2004
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
I know someone, but they are in NJ. Is that ok? Email me at [email protected] if thats ok. They are about, well, from the border of PA, it takes me about an hour to get there to the border of NJ where they are at.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
We have one set of rules for everybody or we have anarchy.
The question you asked is for specific treatment that if answered out in the open could target an LLMD for investigation. (Why go from office to office searching if the target can be narrowed down in this forum).
You are right, I did give you the name of an LLMD (as a result of a different psot that you made). I gave you no specifics in regards to how you would be treated. In fact you sent me a PM asking me if this LLMD would treat a certain way even if there was no objective evidence to support the diagnosis. I ignored this PM as it was inappropriate. You need to take some initiative yourself; I refer you to the second post in this thread.
It would be nice if we could share openly the the specific way that LLMD's treat. However, we do not want to be the initiation of an investigation of our LLMD's. I have not called you a troll, but I still stand by my last post.
Blue
Posts: 35 | From Blueland | Registered: Apr 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Blue,
I really DO NOT appreciate you at all. And thank you so much, sooooo sooo much for ignoring my PM......so much.
this is why im thinking of abandoning this board....its really getting to be too much.
im sick enough as it is . i post on other boards and you know what, everyone gets along...and we share dr treatments. Its so nice because it is THOSE people who have helped me get not just one appt but three diff appts with three diff LLMD that i believe will be able to help me.
I now understand why others have left this board. WOW....sheesh.
Again thanks blue for waking me up and giving me the push i need to detatch from this place in one piece.
Stand by all the posts you want to.....you see one thing i do not lack is initiative.
And people wonder why slowly one by one others are leaving this board.
Depressing
another thing if the other side is going to find the LLMD they are going to find them no matter how hard we protect them on this site.
there are a lot easier ways to track the LLMD.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I agree.. and this board is such a resource, we can't start bullying each other, or being mean. I agree with can't... just need to relax a bit. The sad reality is that if the board is going to go after someone, it is not going to be sparked from a board.
We are all here to get well, and help each other get better... and many of us are very very sick
Thanks all.
Posts: 48 | From Toms River New Jersey | Registered: Apr 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Yo Can't..
Is your suit of armour in the cleaners this week?
Or are you just feeling really poorly? Is it possible you are a bit over sensitive due to how badly you are feeling? I can understand that.. for sure. I tend to get touchy and sensitive when feeling like doggie poo too.
Because Blue's tone isn't fluffy... my guess is it would be hard to tell if Blue was hitting you on the head... or simply trying to inform.
Just so you know...
Blue actually makes a valid point about posting that type of info on the board. You are basically asking for a doctor who will.. or who has a reputation of giving IV antibiotics to someone who has no evidence of having Lyme disease. That is a problem in today's world.. unfortunately.
Do you know what kind of dance the medical board would do on a LLMD's head if they saw that information? YIKES! I can't even imagine!
Unfortunately, we have too many LLMD's under attack these days... and we DO need to be respectful of the doctors so we don't inadvertently put them on the hot seat.
Also note... many of the LLMD's do NOT want their information posted in any way, shape, or form... for that very reason.
May I suggest you make some calls to your 3 LLMD's and ask about their policy directly. My guess is.. their answer would be.. especially for a new patient... something like...
"After the doctor sees you.. then he/she will make that decission."
Now.. please unruffle those little tail feathers of yours.. and get back to work helping folks here who are sick.. like you have been doing for so long... and so well!
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
How is anyone on this board suppossed to help others get better that are sick, when if a poster that needs help whom is sick, is not getting help.
I do agree that our LLMDs are under fire. Thats a no brainer. And believe it or not, some of that may have happened thanks in part to lymenet. I had a woman ( who only posts here once in a BLUE moon)
email me several , several times.. but very spaced out, like six months apart. She wanted a list of ALL llmds, who I seen, what they gave me, how they helped me, if I had negative or positive tests, etc etc.
She sounded fishy and I kindly reminded her that I had provided her with two llmd names before. She emailed me yet again six months later and must have "forgot" that not only was she sick, but also that she had emailed me the SAME EXACT THING six months earlier. I later found otu
she was mailing the SAME EXACT thing to other posters here on lymenet.
The people on this board talk about their protocols religiously, and what their doctor has given them or done for them. and WE ALL , who are experienced here know who are reluctant to give IV and whom are not.
What Im going to offer is my phone number to this poster in help. I cant guarantee what a LLMD will give her , IV or IM or not. Duh.
But, I am going to provide her with a list of LLMD's. If she picks out mine or wants more information on mine, I will GLADLY share what he has done for ME AS ALL PEOPLE ON THIS BOARD Do.
Why would I do this for cant? Because she's been here for a while. Shes not a newbie and I know damn skippy that this woman is ill. To turn her away is pathetic.
Did anyone even send her names of doctors? Names phone numbers at least?
or just jump on here and tell her to help other sick posters when she herself is sick and needing help?
yeah.. Im a little bit peeved myself and perhaps took way too large a dose of bicillin on Friday.
Cant- check your PM. I am sending you my phone number and will give you as many names and numbers as you need. Cant verify alot of info about LLMD's I don't know, but I will try to steer you in the right direction.
And after I help ya, to the best of my ability, if youre still looking for a LLMD- youre on your own. LOL
You know when to protect your LLMD. You KNOW when something is up, or something sounds fishy. And you KNOW when it doesnt. Giving her names of LLMDs whom are MORE inclined to provide IV is not a big freaking deal.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Oh! This is "the thread"...............
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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