posted
I have posted on here over the years and am now asking for information on behalf of my sweet cousin that lives near Atlanta (with her permission of course).
My cousin and I spent much of our youth together in So. California and were very active in the hills/mountains were we lived. I moved back to Utah in 1985 and she moved to Texas around that time. She then lived in Denver and has been in Atlanta for almost 20 years.
I am 41 and she is 38. When each of us were in our young 20's were were diagnosed with CFS and FM. We have had over the years almost the identical symptoms.
I was finally diagnosed with LD in 2003 after who knows how long. My cousin and I have often not kept in touch as much and she gave bith to premature twins in 1997 and they have had major struggles due to low birth weight. So basically, she has her hands full with special needs twins.
During the years she has seen many, many doctor and most recently had an MRI that showed two lesions on her brain. She then had a lumbar punture that was inconclusive. They seem to be leaning towards MS.
I spoke with her today about our similar struggles and symptoms and she informed me that her doctor wouldn't test her for LD because, according to him "it's not in Georgia" and because she has never had a Bullseye rash.
I know to well what these ducks think and how they treat patients that are dependent on help.
I'm wondering:
Can anyone recommend an LLMD near Atlanta?
Does LD manifest with lesions shown on a brain MRI?
Does anyone think that it is possible that we both were infected with LD growing up in So. California? That would explain a lot. Her older brother (also my cousin of course) lives in Dallas and has CFS but I don't know any details.
Our mothers often wondered if there was something in the food, water or air.
I'd really like to help my cousin get some answers. She has such a handful already and is not doing well.
Thanks for any input! Posts: 80 | From Salt Lake City, Utah USA | Registered: Apr 2004
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