posted
Hi, I have just been dx'd with LD and have a ton of questions? Especially regarding how long I may have had it?
Primary MD just put me on 23 days of Amox 5oomg 3x day. I personally do not think from what I read that this will do anything.
Also, FYI in 2006, saw neuro regarding terrible headaches, muscle twitching ,hair loss,fatigue. He dx'd me with Benign Fasiculation Syndrome.
Saw neuro again last week due to flare up in symptoms, again MRI, EmG clean. Was told to go home and have a drink.
2 days later had strange feeling of weakness in arms, went to primary and got blood work. 3 days later dx'd with Lyme.
Went back again to neuro on 3/19 with new blood work results and found out in 2006, I had one band pos for LD, but you need 2, so he feels there is no connection!
I find this very coincidental that 2 years ago I did have some antibodies to Lymes, with Lyme symptoms and feel this is now a Chronic case.
Definitely not one that just got contracted within the last 4-6 weeks. Please help me find a LLMD in my area, I am going absolutely crazy here.
Thanks
[ 25. March 2008, 05:47 PM: Message edited by: coffeebehm ]
Posts: 10 | From King of Prussia, Pa | Registered: Mar 2008
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bettyg
Unregistered
posted
WELCOME, would you like a copy of my newbie package of 112 pages info galore includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 of 112 pages since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain thigns: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR, no infrared SUNGLASSES, etc. and how to use this board!
if yes, please send me a PM, PRIVATE MESSAGE, it's 2 people standing together icon asking me to send it to you. i will send within 1 day of receipt of your pm; thanks **************************************************
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
hah, i live near you, sounds like the dr I went to see. for some reason Quest only ran the IGG(past infection) for my lyme. Dr's never picked up on it,
I was the one that noticed it. My neuro was the one to order the test. sigh.
I will PM you with some names.
hang in there
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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tickbattler
Unregistered
posted
Hi, We live in Malvern and have tried a local doctor as well as one in NJ and one in CT. We are now going to see Dr. R in NYC next week. I have only heard great things about him. We have learned that since this is such a long, tough battle, it is important to be with a doctor who is aggressive enough to get the job done. Dr. R has been doing this for almost 20 years and is apparently in the same league as Dr. B (the one who wrote Advanced Topics in Lyme Disease). Let me know if you want Dr. R's number. tickbattler
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posted
As you can see from my info below, I'm a stone's throw from you. We see an LLMD in NJ and have been pleased with him. LOTS of folks from this area see him - the CVS in Wayne knows him by name. Sad that so many of us have to travel to be taken seriously, though, compared to many, we don't have a terribly long trip. Let me know if you'd like his contact info.
-------------------- Getting older is when we would rather not have a good time than have to get over it. - Oscar Wilde Posts: 386 | From Radnor, PA - where the ticks run free | Registered: May 2006
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Sad that so many of us have to travel to be taken seriously, though, compared to many, we don't have a terribly long trip. Let me know if you'd like his contact info.
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