posted
Hello, I am new to this site and am looking for a lyme disease specialist, I live in New York, Deer Park, Long Island. Please post.
I am 32 years old however never had a tick or rash mark that i remember.
I do have a dog.
7 months ago i came down with H.Pylori a bactera in the stomach.
Since then I have been tested for HIV, Hep. A,B,C, Lyme, Lupus, Colitis, Chrohn's Disease had numerous CatScans, MRI and tested for MS, Diabetes.
These are my symptoms:
Rush or altered state then become weak. Continous, excessive burping, increased bowel movements (diahreea).
Perceptual Problems, (vision or Depth Perception) Tingling in hands, feet and other areas of body.
Fatigue......I was always working out before this running, lifting weights, etc...
Under my skin on my stomach i feel like nodes or painful bumps.
Tightness in my Jaw, Balance is off.
I have been to a Cardiologist, Gastrologist, Neurologist (multiple one's) and other doctor (rheumotologist) to no avail.
Everything comes back perfect my Cholestrol is low even. Im going nuts I know I have stress and anxiety but that is due to my lack of ability and pain and overall well-being.
My lyme test was done by Quest Diagnostics it was a Lyme Disease AB W/RFX - Screen came in at:
0.42 out of 0.00-0.90 Don't know what this means but my Neurologist said it's negative shouldn't it be 0.00??????????
Someone know a lyme specalist or help!
[ 21. May 2008, 04:53 PM: Message edited by: Laszlo ]
Posts: 1 | From New York | Registered: May 2008
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bettyg
Unregistered
posted
..welcome lazlo; so glad you found us.
please read the top 4 posts where we need more info from you so we can help you the best that we can ok!
like, what tests have you had done to diagnose lyme? example,
western blot igm and igg and WHAT LAB performed this; only 5 got ones in usa...
did you have a tick embedded or bulls-eye rash?
what symptoms?
for you or a CHILD, and if child...how old??
WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
**********************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. *******************
WE'LL HELP YOU OUT; we just need more info to work from ok!
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-------------------- Suffering too many years to count. Can't remember anyway!!!! Posts: 46 | From It's News to Jersey | Registered: Mar 2008
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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