posted
My daughter 13 years old is suffering from Lyme disease since Sep 2005. We lived in Stamford, CT from 2003 till Mar 2005 and then came back to India. After 6 months of coming back, she started having mood swings, social withdrawal, and slowly went into vegetative state losing all her cognitive functions and motor senses in 3 months. Doctors in India didn't have any clue as Lyme does not happen here. We got help from one of our friend in Stamford who consulted doctor and he advised to go for Lyme serology which was positive. She was put on IV Ceftriaxone 4g daily for 4 weeks and in next 6 months regained all her abilities except walking independently. That also has improved after physiotherapy but since last 1 week, she has started presenting same symptoms which were there at start of her illness in sep 2005. We are worried and scared that it could be a case of relapse of Lyme. Can someone help us out by referring to a doctor who can help us by providing consultancy and treat her ? thanks
-------------------- Sanjay Posts: 7 | From India | Registered: May 2008
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bettyg
Unregistered
posted
sanjay, breaking this up so we neuro lymies can comprehend and read it; please do this in future ok!! thanks! betty
quote:Originally posted by Sanjay Murgai:
My daughter 13 years old is suffering from Lyme disease since Sep 2005.
We lived in Stamford, CT from 2003 till Mar 2005 and then came back to India.
After 6 months of coming back, she started having mood swings, social withdrawal, and slowly went into vegetative state losing all her cognitive functions and motor senses in 3 months.
Doctors in India didn't have any clue as Lyme does not happen here.
We got help from one of our friend in Stamford who consulted doctor and he advised to go for Lyme serology which was positive.
She was put on IV Ceftriaxone 4g daily for 4 weeks and in next 6 months regained all her abilities except walking independently.
That also has improved after physiotherapy but since last 1 week, she has started presenting same symptoms which were there at start of her illness in sep 2005.
We are worried and scared that it could be a case of relapse of Lyme.
Can someone help us out by referring to a doctor who can help us by providing consultancy and treat her ? thanks
welcome sanjay; so glad you found us! wow, 13 yrs. old deserves a KIDS LLMD, lyme literate md in usa.
nationwide there are only 12 kids llmds!! most on east cost!!
best one is in conn., dr. jones.
I'LL SEND YOU A PRIVATE MESSAGE W/HIS INFO; nothing is to be posted on PUBLIC board .... names, city/state, phone nos, etc.
reason dr. jones is mentioned here is because he's had bogus charges filed on him by conn. health dept.
WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
**********************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. *******************
perhaps 3-4 lyme literate in all of Europe ???
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bettyg
Unregistered
posted
....SANJAY,
please copy my broken up post about your daughter and post in MEDICAL as a NEW POST.
tell them also i have sent you kids llmd no. 1 in conn. too
they might have other ideas. we have many international members too!
please make sure you go to lower left hand corner and click box to receiple all replies to your post. click send.
then i'd go to support, and delete your post there since we have it in medical and you'll get more replies there ok.
so go to right of your name in SUPPORT post, and click on the PAPER/PENCIL. that opens up subject line and body text to add or change things.
now go to top LEFT corner, and click DELETE POST, HIT ENTER, and support one is gone.
ignore moderator's comment; you can delete your post and replies any time you chose to by doing what i told you above ok!
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