posted
I live in CT and was diagnose a year ago w/ Lyme and Erlichiosis.(sp?)
Then two weeks ago, went for tests and tested positive again.
Is it necessary to see a LLMD when diagnosed? Do you need a referral from your PCM to see a LLMD?
I don't know what to do, my pcm put me on doxy for 21 days 2x a day.
I really think I had a relapse and want to make sure I am getting the treatment I need.
Again, i am looking for a dr. in CT. Thanks for any advice in advance:)
Posts: 22 | From N.East CT | Registered: Jun 2008
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
Yes!!!!! It absolutely IS necessary to be treated by a LLMD. 21 days of antibiotics is, more than likely, not enough as witnessed by your relapse.
Posts: 2097 | From PA | Registered: Jan 2004
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posted
We wasted six years on non-LLMD's for my son. Get yourself to a LLMD a.s.a.p.!
Now, after two years of treatment by a LLMD, he is slowly getting better!
Posts: 9020 | From Illinois | Registered: May 2006
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daise
Unregistered
posted
Hi C.M.L.
Chronic Lyme disease is very complicated and it affects each of us differently. Yes--an LLMD who follows ILADS Guidelines is essential.
If nothing else, and if money is hard to come by, here is just one idea ... perhaps you could consult with an LLMD, then get a written recommendation for one year of treatment.
We often have coninfections: other tick illnesses.
In Connecticut, perhaps you can find a PCP or internist to administer that recommendation. They're hard to find!
Treatment takes a long time! With getting one year, that will give you time to figure out what you'll need to do to continue treatment.
Maybe your local Lyme support group would know of a PCP willing to do this. Stay way clear of an infectious disease doctor! They do not take Lyme seriously.
At the top of any page, on the left, is a leafy menu. Click "Support Groups."
For information on chronic Lyme, please go to www.ilads.org and on the left menu click "Treatment Guidelines."
Ask an LLMD if they follow the ILADS Guidelines (as opposed to the IDSA Guidelines that are not at all adequate.)
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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