posted
Hello All, I would really appreciate some assistance. My 6 year old daughter was initially dx with Lyme 2 years ago. She was very sick, lethargic, migrans rash, low grade temp, achy. She was treated, responded well, seemed fine and then this spring again began complaining of aches and pains in joints - no new bite, rash, etc. Her PC physician tested (positive) and treated again. Okay for a few weeks now she's still achy joints, sleepy, grumpy. We're back on antibiotics but it is clear that isn't the answer. We've been given the okay to see specialists but now I can't seem to find what I think is the right fit. Our PC Physician recommends trying Children's Hospital but their website seems to be down so I'm not getting anywhere looking there. Anyone have a recommendation? I do appreciate your help.
Hockey Mom
Posts: 2 | From Maryland | Registered: Jun 2008
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WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
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Also, if you are needing a LLMD, LYME LITERATE MD, please post on board in SEEKING DR. forum. Go to FORUM HOME, right corner click, and then chose seeking dr.
We ask that ALL members post in seeking dr. and START THEIR OWN ``NEW'' POSTS vs. adding on to someone else's because we can NOT keep track of who has been answered and who NEEDS to be replied to ok!
Many of you have been sending me a private message asking for llmd names and have NOT posted on the board. I require you to post online because when you show the state and largest cities nearest you; others from YOUR STATE WILL JUMP IN and give you the MOST CURRENT info that they have.
We have nationwide lists do NOT have most current info! We do what we can, but we depend on members to share all updates, deletions, phone nos. not working or changed, etc. with us. Then we let the others know promptly who have lists!
So thank you for starting YOUR OWN POST in seeking dr! We/I will help you as much as possible over there! Betty *******************************************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
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we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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posted
Thank you, thank you, thank you to all who replied to my request. I will update as we move further along in this process.
Posts: 2 | From Maryland | Registered: Jun 2008
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your story sounds like my kid. She had a co-infection, babesia. So i recommend keeping a journal of symptoms. It was my daughter's odd symptoms that allowed a clinical dx of babs: she had night sweats and fevers. Her clinical dx was backed up by lab tests ordered by her llmd.
It would be great if you have a journal of symptoms when you go to your llmd. Also AVOID SUGAR.. I can't stress this enough. For my child one ice cream would mean days of exacerbated symptoms.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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