I have an appointment to see Dr. C, located in Westchester, NY, next week. I was wondering if anyone could tell me about their experience[s] with him, positive or negative.
Thank you, L
-------------------- Currently under the care of an LLDC for the homeopathic treatment of Borrelia, Babesia, Bartonella, & Ehrlichia. Posts: 27 | From NY | Registered: Jul 2008
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posted
If it's the Dr. C in Mt Kisco, I can comment.
I think he is great. I have been treated with orals for 1 year (in several practices), he just moved me to IV. I had major skin irritation and left them a message- he called me back asap. Then I had a gall bladder attack and he took my husband's call at 12:30 am.
I think he is incredibly knowledgeable, kind and smart. His staff is great. It was slightly less to get in to see him than my previous llmd. He doesn't glom supplements on you that line his pockets. He seems accepting of alternative treatments.
All in all, good.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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posted
Sorry but I think he is terrible. Please search Dr, C. in mt. kisco in medical and see all the replies. He does not treat long enough. Does not believe in co infections and does not use Igenex. Sorry Teresa
Posts: 115 | From warwick, new york | Registered: Mar 2008
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bettyg
Unregistered
posted
welcome, so glad you found us!
dr. c is controversial as you can tell from the 2 posts above.
teresa brought up 2 IMPORTANT THINGS:
1. he does NOT TEST NOR DOES HE TREAT ANY CO-INFECTIONS!!!
with lyme, majority have ONE OR MORE CO-INFECTIONS examples:
bartonella, babsiosa, erlichia, mycloplasma, HHV-6, etc. (between 30-50 co-infections!!)
2. majority of us believe here that IGENEX LAB IN CALIF. is no. 1 for doing western blot igm and igg blood tests!! they do co-infections too.
3. to save you money, we recommend FRY labs in arizona for co-infections...
this is what i want to CAUTION YOU ABOUT! it is recommended here to TREAT CO-INFECTIONS FIRST and then attack the lyme!
now it's time to read, read, and read, and i offer you the below!
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you! ******************************
we recommend 6-12 WEEKS of doxycycline antibiotics; 2 months symptom FREE before stopping antibiotics.
so glad you found dr. burrascano's 05 lyme guidelines!
call your dr. and DEMAND MORE! you are now in the LYME WAR CONTROVERSY ... another thing you didn't ask for!
please see BELOW LINK about ACTION ALERTS....CALLING 4 WASH. DC PHONE NOS. GIVING THEM YOUR FULL NAME/COMPLETE MAILING ADDRESS AND TO "PUT LYME DISEASE ON THEIR AGENDA!"!!!!
IDSA, infectious disease society of america, are infectious drs. who:
.. do NOT believe in CHRONIC LYME;
.. treat from 1 day to 3 weeks MAX ANTITIOBICS, AND YOU ARE "CURED"! HOG WASH!!
ILADS, intl lyme associated disease society, are our LLMDS, LYME LITERATE MDS, and they:
... believe in chronic lyme AND TREAT US AS LONG AS NECESSARY!!!
... another controversy; various STATE HEALTH DEPTS. FILING CHARGES on our llmds for treating antibiotics longer than 4 weeks!!!
example: see activism; read about DR. CHARLES RAY JONES, KIDS NO. 1 LLMD IN CONN! starting his 3rd year of charges trying to take away his license!!!
*********************
Also, if you are needing a LLMD, LYME LITERATE MD, please post on board in SEEKING DR. forum. Go to FORUM HOME, right corner click, and then chose seeking dr.
We ask that ALL members post in seeking dr. and START THEIR OWN ``NEW'' POSTS vs. adding on to someone else's because we can NOT keep track of who has been answered and who NEEDS to be replied to ok!
Many of you have been sending me a private message asking for llmd names and have NOT posted on the board. I require you to post online because when you show the state and largest cities nearest you; others from YOUR STATE WILL JUMP IN and give you the MOST CURRENT info that they have.
We have nationwide lists do NOT have most current info! We do what we can, but we depend on members to share all updates, deletions, phone nos. not working or changed, etc. with us. Then we let the others know promptly who have lists!
So thank you for starting YOUR OWN POST in seeking dr! We/I will help you as much as possible over there! Betty *******************************************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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posted
Dr. C had me tested for co-infections. I was positive on babs and he treated it with an extended course of mepron which was covered by insurance.
Can't speak for anyone else's experience, but that's my experience. Actually, my two previous docs refused to even look for co's. They both took the position that "we only look for that if you're difficult to treat".
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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said he does. This worries me. I don't even have a
diagnosis of Lyme yet -- I'm diagnosed with
Fibromyalgia/CFS and have been urged to see a LLMD
by friends who believe my symptoms to be
Lyme-related. Is there a doctor whom you can
recommend, also in the NY area?
Thanks,
L
-------------------- Currently under the care of an LLDC for the homeopathic treatment of Borrelia, Babesia, Bartonella, & Ehrlichia. Posts: 27 | From NY | Registered: Jul 2008
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
hi L, from reports i've heard i think the best lyme doc in ny is Dr. H in hyde park. no idea how far that is from nyc/long island, though. i'll pm or comment in your lj with his name and contact info.
posted
I went to him with Igenex results in hand this was a few months ago for a second oppinion. He told me he does not think Igenex is reliable. Please before you make a decision type in his name in upper case ,lower case ( DR. C., dr. c ny,dr c. hyde park etc... ) I am not the only one. My neighbor's daughter had stretch mark bartonalla rash all over he disregarded these rashes she is still very sick. Please type in his name all diffrent ways on search site. Than make your decision.
Or pm our veteran member WILDCONDOR she accompanied many people to his appointments they were always a disaster.
Actually I think he was taken off our list because of all the complaints.
Please do your homework this is just my oppinion. My Best Teresa
Posts: 115 | From warwick, new york | Registered: Mar 2008
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posted
The doctor I go to id Dr. R in Wading River N.Y. he takes insurance and so far he has helped me. I originally found his name because he did a conference with Dr. B. the guru of lyme.
Also Dr. H. in hyde park is great he saved my friends life. He treats more aggresive but I heard he is wonderful. The only thing is he does not take insurance.
If you need any info please pm me. The last thing I want is to bash a dr. but I would not be honest if I did not give my oppinion.
Posts: 115 | From warwick, new york | Registered: Mar 2008
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posted
I am switching from this doctor. Actually my first new LLMD appt. is next week.
He does not use Igenex unless you demand. Even if he does write the script for it he doesn't believe they are reliable. I know this becuase I went there with my results in hand. They weren't even looked at.
He did help me in my first year of treatment...only becuase I could not afford anyone else. He does not believe in anything but abx. He will not recommend supplements.
Also, I have had 2 positive bartonella tests. One from Igenex and the other from Stonybrook. He does not believe in bartonella. He will give you Levaquin if you fight for it but your basically on your own if you have a problem with it. You will get the I told you so attitude.
I also think that his staff has gone down hill. My phone calls always use to be returned promptly. That hasn't been the case in the last few months.
Sorry to be a downer but he is not on the top of my list.
posted
thank you for all the replies. my appointment with
him is tomorrow morning. at least now i know to
insist on igenex testing. he's the first llmd i'm
seeing, so i'll see how it goes and take it from
there. depending on the outcome, i'll probably
schedule an appointment with the dr. in hyde park
in the future.
again, thanks so much for the input.
-l.
-------------------- Currently under the care of an LLDC for the homeopathic treatment of Borrelia, Babesia, Bartonella, & Ehrlichia. Posts: 27 | From NY | Registered: Jul 2008
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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