posted
That's confusing: go to top/bottom, but I see the box now. Why didn't I see that earlier? grr! Here's my info:
I can't figure out how to post a new post. Brain fog here. I am looking for a Lyme literate MD in CT, Hamden area. Thank you ahead of time!
Got stuck with a needle at work (I am a nurse) and they gave me a tetanus shot and I have never been the same since.
I had bull's eyes on my legs years ago, but they were purple, like bruises, not red. I recently saw in a few places on line where Lymes DOES sometimes present as bruise type areas.
I have burning boiling pain, stabs of pain like I am a voodoo doll....needle stabs here.... knife stabs there...they come and go.
I have exhaustion. Not like normal tired, but can't stand up for long times, my ex had to drive me to school because I didn't have the energy to walk across campus
(I am trying to go back to school to get a different career because of all the back pain, sciatica, problems in all my hand joints popping and peeling meds at work, carrying water container.
But now I am geting scared because of the memory thing. I feel like my thoughts are there, but I feel like my brain can't find them....like my brain is swollen or swollen or water on the brain.
Sometimes I take decongestants with the hope it shrinks it. Speaking of that, I was diagnosed with chronic sinusitis and allergic sinusitis. But I never had problems with my sinuses until I was 30!
I had so many at that time, they gave me an antibiotic they said was the last resort before they put me in the hospital.
I faint when overheated. I have fainted after drinking small amounts of alcohol. When it happens I get severe dry heaves and feel like my insides are forcing themselves out.
I was diagnosed with neuro-cardiogenic syncope (which I think is similar to neuromediated hypotention.
I mix up my words. I write dyslexic. I take the first syllable from one word and mix it up with the first syllable second word.
I have muscle spasms, jerks, even a Babinski sign in my big toe for no reason. I wake up many times during the night with pain in my legs. I feel like I need to go on the stationary bike they are so antsy.
A doc said a had a droop in my eye which seems to have gotten better. My brain fog is getting so bad it's scaring me.
I feel floaty all the time. I have floaty headaches that come and go. I keep bumping into walls, losing my balance, can't think straight, lose my socks 3 times before I put them on.
I have a hard time reading lines up and down or across at work and keep putting down the wrong V/S (vital signs) for the wrong patient.
I now have problems in my hands. If I carry a shopping bag or a chart at work, I have sharp pains and drop things and can't write.
I drop coffee cups, etc. I lose strength, get a sharp pain and its as if my joints get stuck. It moves to other places...my big toe...my knee... I feel like I am going to fall. It gets stuck. Sometimes my leg muscle lets go when I am walking and I almost fall.
I was diagnosed years ago mono (29 years) with chronic Epstein-Barr dianosis 18 years ago. The Lymes test taken at the same time was negative.
When I was diagnosed with the chronic Epstein-Barr, it was already 10 years since the high fever, sweats, and the purple bull's eye (now it's been .
The high fever was NOT the same time as the purple bulls eye 'rash'. I am not sure if I am explaining this right. Mono was -did I mention I am no longer good at math? ha ha
Mono 1979, bull's eye two years later. I had spent a lot of weeks in the woods that summer. Never seen a tick. Didn't know why I had the severe high fever.
I was eating salt and vinegar chips at the time I got sick and I could smell a vinegar smell with all the sweating from the fever! Later...a month? the bull's eye happened.
But the boiling burning pain muscle spasms etc. didn't happen until I got stuck with a needle at work, and got the tetanus shot that same day. I have never been the same. I got sent to neurologist, rheumatologist, endocrinologist, and then to pain manangement.
They were treating it as fibromyalgia. No one would pay any attention to me when I told them about the needle stick and the tetanus shot causing it.
The brain fog is getting worse spacey headaches, forgetting what I just did 2 seconds ago, forgetting where I put things, and bumping into walls is newer (worse) mixing up words.
The damage to my ?muscles? ligiments when I carry shopping bags, charts, school bag is new. It feels like it rips my muscles and I am out of commission with that hand for days. I switch, it does it to the other hand.
I can't pick up water containers at work with one hand. I try to pop the bubble packs of meds at work with my opposite hand because I get a sharp pain and my hand doesn't have enough strength.
When I did that, I pulled a muscle just trying to pop the pill out with my opposite hand. Xrays done and negative. I have had 2 positive rheumatoid factors in the past, and now it's negative. Go figure.
Has anyone tried colloidal silver? They tried to get rid of that too.
They don't want to admit they caused it, and know they don't want to admit there *might* be a cure to these biowarfare diseases that may or not be an accident that the public has an epidemic.
Thank you in advance! -d
Posts: 37 | From Connecticut | Registered: Jul 2008
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bettyg
Unregistered
posted
d,
i sent you conn. llmds; check MY PROFILE for my pm to you! **************
my you've given the runaround 10 yrs. less than me! so sorry for all you have been going thru!!
sounds like restless leg syndrome; carpal tunnel of hands/wrists,
NO STEROIDS FOR US; messes up the immune system!!
in my newbie package, do a search for this:
edit, find, and type in COGNITIVE ... hit enter and read every instance it pops up until you get to some posts, and a very recent one explaining this quite well!!!
we have LYME disease named after LYME, CONN .... NO S on end; correct all you encounter ok!
i'll repost the symptoms for lyme and basic 3 co-infections ... there are 40 plus of them! ****************************************
Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
The following signs/symptoms may be present in those infected with Babesiosis:
Fatigue Arthralgias Myalgia Drenching sweats Headaches Emotional lability Depression Dark urine Splenomegaly Dizziness Nausea and vomiting Cough Dyspnea Fever Chills Hepatosplenomegaly Jaundice Malaise Shortness of breath Bleeding tendencies, bruising Thrombocytopenia Hemoglobinuria Hyperesthesia Pulmonary edema Encephalopathy Low to normal range leukocyte counts Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia
Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection.
An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients with Bartonella.
Note: Approximately 50 percent of patients who develop Encephalopathy can be affected by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches, Cognitive Dysfunction, and CNS Lesions may be evident.
RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the head, and neck. The papules may appear on the skin or mucous membranes. Bartonella may also cause subcutaneous nodules, with some bone involvement possible. The nodules may show some hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.
EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud's Oculoglandular Syndrome, and Papilledema.
BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis, Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.
HEART: Endocarditis, Cardiomegaly. Possible lab findings: The following may show up during standard testing: Thrombocytopenia, pancytopenia, anemia, elevated serum alkaline phosphatase level, elevated bilirubin, abnormal liver enzymes.
X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal reaction. Cardiomegaly may show up on a chest X-Ray.
Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis. Reports of biopsies strongly suggestive of lymphoma do occur.
Tests occasionally show an enlarged liver with multiple hypodense areas scattered throughout the parenchyma.
To those exploring endocrine issues: Please, please, please don't forget to examine your adrenals....Some hypothyroid patients may actually make their adrenal fatigue worse by just treating their thyroid (you need to look at both; some doctors are now saying you need to treat/examine your adrenal issues before starting thyroid treatment):....
For optimum results, please look at both...
SIGNS OF ADRENAL FATIGUE: *************************
1) Do you have a hard time falling asleep at night? 2) Do you wake up frequently during the night? 3) Do you have a hard time waking up in the morning early, or feeling refreshed? 4) Do bright lights bother you more than they should? 5) Do you startle easily due to noise? 6) When standing from sitting or from lying down, do you feel lightheaded or dizzy? 7) Do you take things too seriously, and are easily defensive? 8) Do you have difficulty "recovering" (are really sore)from exertion/exercise?
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
also sent a pm
Posts: 2675 | From ct, usa | Registered: Jan 2004
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