posted
Hi,I'm looking for a doctor in or within a commutable distance to Santa Rosa,CA. I've had all the classic Lyme symptoms & some neurological type problems for a few years now. It all started one summer after I found several of those really tiny deer ticks on me in Pennsylvania. I never noticed a bullseye but a couple that bit my scrotum(nuts,or whatever you wan't to call them,lol),itched really bad & the area was red. I got real sick & flu like in the middle of summe,thoguht I had a stomach virus and/or flu. After that I started having dizzy spells,feeling out of it ,very tired & just not normal. Well this has gone on now for about 3 years & the symptoms come & go,but if I feel better,they always come back,now I'm having bad headaches,soerness & stiffness in my joints,etc.
I got tested for Lyme a couple weeks after the bites but it came back neg. The doctors tell me I have anxiety & that nothing is wrong,I also had a head MRI & numerous blood tests,all of which were 100% normal. I have read though that Lyme tests are not always accurate & I did have a bad herpes simplex outbreak on my lips when I was tested,I heard that this can affect the test somehow? I also saw a guy on that show Mystery diagnosis,who had very similar symptoms,feeling intense tingling in the head & then feeling like your going to faint & getting sweaty,but never fainting. It turns out he had Lyme & went misdiagnosed for years & had like 8 negative Western blots! Anyways,I don't know if I have Lyme,but seeing that all my other testing was normal & the Lyme tests are often wrong & I was bitten my more than one little deer tick back in the NE where Lyme is common (I had several friends back there who got it),I think it's worth seeing a specialist. My family doctor isn't worth a damn & just says it's anxiety,plus Lyme isn't that common in this area so I don't think they deal with it much. Thanks for reading,sorry for the long post,I just wanted to give everyone the lowdown on how I feel,so you could let me know what you all think.
Posts: 1 | From N.California | Registered: Aug 2008
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posted
My daughter just returned from San Francisco, after battling Lyme by herself for 1+ years. When she was in CA, she saw Dr. B of Gordon Medical Associates in Santa Rosa. He was great, LLMD,and very compassionate (unlike her other LLMD). He is also willing to try alternative and homeopathic approches, and will do what it takes to help you get better. I strongly suggest him, although his support staff is not so great. Hope tis helps.
[ 13. August 2008, 07:04 PM: Message edited by: minneapolismom ]
Posts: 14 | From Minneapolis, MN | Registered: Aug 2008
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bettyg
Unregistered
posted
MOM,
please go back and EDIT your entire post; ******************************************
1. break it all up into SHORT paragraphs for us with neuro lyme who can NOT READ solid blocks posts and be able to comprehend/read them.
2. edit drs. last name....can have LAST INITIAL ONLY!!! NOT ENTIRE LAST NAME,
instructions below how to do this!! ************************************
Welcome; so glad you found us!! xox
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY! *************************************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing.
Example:
PLEASE show your positive, +/-, and IND numbers from both western blot IGG AND IGM blood tests; do it this way please!
IGM ... do same thing for IGG below IGM *******************************************
18 + 41 +/- 78 IND
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! -----------------------------------------------------------------------------------
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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