posted
I Don't remember a bite rash or even initial flu like symptoms, but I have strange things happening that no doctor or neurologist can account for. While Northern Ohio does not seem to be a hotbed for Lyme activity I am (or should I saw was () active in the outdoors, epically with golf where there are many deer.
For well over 2 years I have had chronic spasm accompanied with some degree of neuropathic pain (shooting, tingling). That aspect doesn't bother me that much compared to chronic facial nerve problems I developed. I stared having constant 24/7 pulsing like pain on the left side of my face along the side of the nose in sinus area, accompanied my tingling and burning sensations. When to several respected ENT's and say my sinus's are fine, and I can breath fine. It has since started occurring on the right side of my face as well, which is most perplexing to doctors since bi-lateral face nerve problems are rare. Even More rare I was 24 (now 26) when these symptoms started and facial nerve pain without any trauma at that age is almost unheard of.
Over the last few months I have developed heat palpitations and other odd sensations along with that. When I am in bed I can feel the heart and arteries moving me back and forth, very strange. I also have and extreme amount of floaters in the eye, again which are rare for someone my age. Fatigue level is kind of hard to place since I was still fairly active when the problems all started but lately I have been extremely tired. I can say at least part of that is due to all the medication I am on, (which has not helped at all either)
As far as test done, CT, MRi's of head have all been clear. I'm not sure what blood test my PCP ran, but I know my MCV is low and so is my iron. That is again odd because no one in my family has Thamessia (sp?) and I eat enough meat and fish for 2 people, which suggest it is due to chronic inflammation or bleeding. I have not ran any blood test for Lyme as of yet because I've haven't even thought of Lyme as a possible cause, plus from what I read I doubt my PCP would be able to do much
If you think any of this could be related to lyme and worth looking into, I would love to visit a LLMD just to rule out the possibility. Thanks you for your help!
Posts: 4 | From Cleveland, OH | Registered: Aug 2008
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bettyg
Unregistered
posted
CHECK YOUR PROFILE FOR OHIO llmds!! **********************************
hi; please break up your paragraphs into SMALLER ones yet for us NEURO Lyme folks; we just can't comprehend and read that much!! but was glad your entire post was NOT IN ONE solid block text! instructions below
Welcome; so glad you found us!! xox
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY! *************************************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing.
Example:
PLEASE show your positive, +/-, and IND numbers from both western blot IGG AND IGM blood tests; do it this way please!
IGM ... do same thing for IGG below IGM *******************************************
18 + 41 +/- 78 IND
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! -----------------------------------------------------------------------------------
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
posted
Your symptoms are exactly the same as mine. I tested positive for babesia. Once you get some tests done you'll have to let me know how they come out. It looks like betty already sent you doctors names.
Posts: 499 | From Indiana | Registered: Oct 2007
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pmerv
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![[Embarrassed]](redface.gif)
() active in the outdoors, epically with golf where there are many deer.
![[lol]](graemlins/lol.gif)
![[Big Grin]](biggrin.gif)
instructions below![[Smile]](smile.gif)
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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