Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
This is about a friend who just finished watching my copy of "Under Our Skin" which I brought to Hawaii with me to show my mom who is Lyme/MS/Anklyosing Spondilitis. My friend is running out of time and has been given a couple of years, being diagnosed with something very similar to ALS. He has very little control over his body anymore.
When we arrived to show him the video, he seemed rather low, but then who wouldn't be in his situation. But by the time we were done watching, his spirits seemed much, much higher. It was as if he felt a ray of hope. He even told some jokes!
He said he had about 95% of the symptoms listed in the movie, and had spent much time in the New England hot spots, camping and hiking AND has a brother already diagnosed with Lyme Disease. How Lyme educated he is though, I don't know. But, Under Our Skin is VERY compelling.
But as I said, his days are numbered if he doesn't get on this quickly. He would like to look under this rock, leaving no stones unturned. He has absolutely nothing to loose.
He would likely be able to make it to the Southern California area. It would be with difficulty, but he sounded like they would figure out how to do it.
I know there aren't many options in S. Cal, but I do know there has to be someone, because I just recently met a woman who has a port into her chest in the San Diego area. I will be contacting her as well, but the LA area would be a better choice for him as he has family or friends in the area.
Look forward to hearing back from you.
Thanks!
Posts: 1251 | From california | Registered: Apr 2005
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
Private message sent.
Posts: 2097 | From PA | Registered: Jan 2004
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I have been given a couple of names, but would like to have thoughts has to who is best. This may be my friends one and only chance, so when they leap, they MUST land in the very best spot, they aren't likely to get another chance.
Posts: 1251 | From california | Registered: Apr 2005
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posted
Sorry Jelly, Forgot to add to the PM that the best is the one booked up (see this one if at all possible) but don't discount the other recommendations.
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