I had a bulls eye rash 16 months ago, but since I had no idea about the Lyme disease I just thought it was a spider bite I was allergic to. I never found a tick on my skin, the rash was on my upper leg and looked like a spider or a mosquito bite. It was there for almost 20 days.
I started to have knee pain first,and I thought it was the weight I gained. After 2 months I started to have heart problems. It became so severe I visited a cardiologist. I had an EKG, and was prescribed with a stress test but could not follow the visits. Then started my joint pains, shooting pains all over my body along with the deep depression. I turned into someone else in couple of months.
I though I had panic attack, then I thought everything was from a depression, but the joint pains almost everyday, the tiredness, fatigue, etc was unbearable. I have been having night sweats all through these months,also. It makes it impossible to have a healthy sleep. My cloths, my pillow all gets so wet I have to change them twice almost every night.
Then I found out my vision problems, that I couldn't focus, look into the computer or tv screen, the light was bothering me like crazy. And I had my first migraine of my life. I was thinking I lost my mind.
After 1 year I had a herniated disc, and I was diagnosed with mild arthritis also.
This last month, I am having very severe neck stiffness and numbness, it gets very hard to hold my head up, the feeling is very weird.
I started to lose my memory it seems. I can not remember the words I wanted to say seconds before. My short term memory is almost lost. My mind is like there is a heavy fog in it. I sometimes cannot make any sense of what I hear from other people.
And all of these symptoms and many others seem like taking turns in cycles....
2 months ago, I saw the picture of a bulls eye rash in the newspaper , and then it caught my eye, the Lyme disease. After reading the article, everything in my mind was answered. I went to a primary physician. However, the tests my primary physician gave, Eliza test and western blot I guess, came negative. Even though I told her how severe my symptoms are , since the tests came negative, she thinks I do not have Lyme disease. She gave me some more hormone tests and said if they come up negative, she will send me to a rheumatoid doctor. I mentioned the rash many times, and she just thinks the tests are negative so she will ignore the rash...
Now, I am terrified. I do not know what to do. I am positive that I have this Lyme disease. I decided to see a Lyme literate doctor. However, I do not know who to see. I Live in central islip, ny now but I will be moving to Queens in 15 days.
Please give some sort of lead so that I then will have a path to follow. I am emotionally broken down, terrified and lost.
thanks, hande.
-------------------- hande. Posts: 6 | From queens, ny | Registered: Sep 2008
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Posts: 204 | From ma | Registered: May 2007
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bettyg
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so sorry for all you have been thru to date.
sending you nyc llmds ...
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
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