posted
I'm new to this, so hope I'm not giving too much info...
Our 7 year old son was treated for Lymes on 8/8/08. He was seen by our PCP (several docs in one practice) about 10 days earlier for a large red/pink "bite" on his arm. A few days later we noticed it looked like a bullseye. We called about TESTING & were told blood test would not show until 2-4 or 3-6 weeks later, so waited a few more days, then asked to have him SEEN by PCP again (dif doc this time) who instantly prescribed Amoxicillin 2x/day -- for 10 days if negative and 20 days if positive (Doxy is only FDA approved for those 8 years and older). Bullseye was 10 cm x 15 cm at this point. A new red/pin area appeared on his back the day after starting amoxicillin. I immediately made appts on my own for him to be seen by Dr. P in York, PA and Dr. D in Hershey, PA. Recommended Amoxicillin dose be given 3x/day for total of 20 days. Not sure what test was run but it came back negative (drawn 9 days after bite - a bit soon?).
All seemed ok, but around mid-September he mentioned knees hurt one morning, then again 2 days later one hurt, next day the other one hurt, then ankle hurt, seemed extra cranky a few days, fell asleep on way home from sitter's 2 or 3 times, even said his joint at index finger/hand hurt one night after 5 minutes of doing homework, and now (after sister and brother got a cold) he has a cold and for three nights this week has slept from 5 PM until about 6:30 AM (pops awake at normal wake up time on own). Granted he is taking meds and inhaler for cold which makes you sleepy. Today he was back to doctor & started Benadryl for a rash (from antibiotic?). Rash seems to be gone tonight. I have a reason/excuse why everything hurts - sick, growing pains, fell on grass while playing, new school shoes, etc......but wonder if it could be Lymes. We live in the York/Adams County area which are two of the largest growing number of Lymes cases in the state.
Is there a LLMD anywhere in the Gettysburg, PA; York, PA; Lancaster, PA; Baltimore, MD; or anywhere else (willing to drive) that you recommend? How long after a dose of antibiotics can he be tested? How do you MAKE CERTAIN the test is done by the IGeneX lab or one that is as accurate as this lab? Do I ask for a certain test (tests) first?
Part of me says I am making too much of this, but I know I am doing a lot of extra praying just in case.
Posts: 2 | From New Oxford, PA | Registered: Oct 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
print off dr. burrascano's lyme guidelines below; read info he has about KIDS meds!!!
take photos of rash when present using coins or $1 bill and having today's dated newspaper in VISIBLE place!
i see you were sent names!! good.
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
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Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
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WE SPENT 13 YEARS IN FL W/ THIS DISEASE AND FOUND ONLY 1 DOC
DR C IN TAMPA
BUT IF I HAD TO DO IT AGAIN I WOULD HAVE GOTTEN THE HELL OUT OF FLORIDA W/ THID DISEASE
DR C IS THE ONLY ONE IF YOU NEED TO SEE ANY OTHER DOCS ASIDE FROM DOC C THEY WILL WORK AGAINST YOUR LYME DIAGNOSES
THIS IS AIG PROBLEM - PLUS DOC C HAS SOME OF HIS OWN HEALTH ISSUES WHICH HAVE CAUSED HIM TO REDUCE HS # OF PATIENTS
AGAIN GET THE HELL OUT OF FLORIDA - IT MIGHT BE TE WORST PLACE FOR YOU TO SEEK TREATMENT W/ LYME
WE NOW TRAVEL ALL THE WAY TO DR P IN CT AND THE DIFFERENCE IS LIKE NIGHT AND DAY
NOT ONLY DO WE GET SUPPRT FROM DR P BUT ALSO ALL THE REFERRED SPECIALISTS HE WORKS WITH THAT ARE ALL ON BOARD -- NOT AT ALL LIKE YOU WILL ET ANYWHERE IN FL
TRUST ME GET OUT - WHILE YOU CAN STILL WALK - MY WIFE IS IN A WHEELCHAIR NOW
AFTER LAST TREATMENT W/ DOC C SHE WAS BETTER BUT ONLY FOR 9 MONTHS THEN GOT WORSE THAN EVER
DR P IS LISC IN CT AND NY AND ALSO TREATS MANY PEOPLE FROM MA AND ALL OVER THE COUNTRY
ANOTHER DOC IS DR L FROM ARMONK NY -
Posts: 25 | From Florida | Registered: Jul 2008
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