posted
Sorry to all for posting a run on paragraph. I should have known better - I can't hold the attention for long either.
Thanks to all for your responses, I think I have found the right place.
As you all know, this is so frustrating and it's been going on so long. I've been to so many drs and everyone disagrees with the other,ugh.
When I got my new bloodwork results yesterday, I was not surprised by the two + igg #41 & 18 but was surprised by EBV. I'm just hoping the llmd will read that as positive and I can start antibiotics.
Is this where I continue to post? Never joined one of these groups, not sure of protocol!
posted 11 October, 2008 09:43 PM -------------------------------------------------------------------------------- Breaking this up for those of us with neuro lyme..
Like most of you, I've been suffering for a long time with chronic fatigue, pain, neuro symptoms, fog - I could go on but looks like you all know the story.
LSS - Bad flu 10+ yrs ago, was never the same since.
9 yrs ago tested positive (finally) for Lyme and was treated for a few months with antibiotics.
Since then have not tested positive but have been going through hell most of the time with short times of feeling okay in between.
Started meds for fibromyalgia. Recently my primary decided it wasn't fibro because although I had pain in all the points at some time, didn't have tenderness in many points at once.
RE-evaluated it, went to many drs who conflicted fibro/no fibro.
Frustrating. Last Rheumatologist said I was depressed and needed a psyc to manage my meds. ????
Getting there I guess.
Psyc said I cheered her up.
Ran some new blood work and EBV is flagged, convalescent or chronic/reacctivated phase, numbers off the charts.
But I've suspected neuro lyme forever, can't seem to find a dr that will say anything other than I keep getting reinfected, there is no chronic lyme.
The current blood work shows Igg p41 present and Igg P18 present.
I saw something that EBV can sometimes appear with lyme antibodies, but I'm confused.
Of course, I'm going to follow up with a llmd as soon as I can get an appt but thought I'd write to see if anyone thought this is late stage lyme or the EBV getting involved?
Regardless of what happens, I feel for each and every one of you.
It is horrifying how my life has changed, luckily I have health insurance and a supportive family.
I know others aren't as lucky. I hope you all find answers and get well
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