note: TAKE 6TH/duff west ................................
AMES, IOWA
Discussion will be led by me, Bettyg, afterwards.
This is a free event. *********************
IOWANS COMING,
please reply below with your 1st name and how many will be attending please.. --------------------------------------
so handouts can be printed and enough be present; thank you!
BettyG
will print rest of info when I can talk to head person at library. **********************
hi all,
last night i finally was able to get some action from our Ames, Iowa public library to have UOS dvd to air there on Sunday AFTERNOON, Nov. 2, 2008.
time to be announced ASAP
more details to come; she had to leave for weeklong library conference so we couldn't make more details when she called.
my request sent over 2 months ago got lost in the transition of new duties being reassigned!
i've worked over 2 months also with our hospital; again, new people coming on board and my request was lost in tracks! sounds just like lyme doesn't it?
so for those living in AMES, IOWA area, please mark your calendars to attend this FREE event! thanks.
posted
Betty, I bought the dvd and my dh and I watched this AM. Thru the tears, we watched others live the nightmare ...but come thru it. it gave us hope. The opportunity to see it free is a blessing ...thank you for making it possible tic
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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bettyg
Unregistered
posted
tic,
thank you for your wonderful feedback of you/hubby watching your personal copy today.
has your area set up screenings yet?
in activism, etc. i showed UNDER OUR SKIN guidelines to set up your own local community showings as i didn't know them and nor had i seen them posted anywhere.
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posted
I am sure that most Iowans involved and receiving the LDA of IA newsletter know about the free Under Our Skin screenings organized by official LDA of IA happening in Davenport, Council Bluffs, and Sioux City Iowa as well.
If you are from a surrounding state in close proximity to those areas, you may want to consider attending those screenings instead if it is shorter than driving to Betty's. Just wanted to make sure everyone knows about all the options available to them for convenience sake.
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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bettyg
Unregistered
posted
robin,
BETTYG DAY
i enjoyed my day and showing off our pride and joy in educating the public!
i had the PLEASURE OF MEETING IMANURSE personally today at iowa's 1st showing of UOS! we had a nice visit afterwards.
to clear up the misunderstanding, when she said official, it was the concept that this was a lyme ORGANIZATION showing this vs. being in someone's home on a "personal" showing.
so we cleared up that misunderstanding and a couple of other things. **********
it was 70 outside so we had a small attendance of only 8 people!
5 had lyme 1 possibly 1 mother of lyme patient 1 library asst. director
no kids or babies there so we could hear this very serious film. many tears were shared today.
had a nice Q/A afterwards for those who wanted to share. our only man had just completed his rocephin.
i gave them the latest of iowa politics who had signed on co-sponsoring our lyme disease bill and also that obama had as well.
we had some 1 on 1 and i appreciate shaz's help in things of being organized for this event.
all wanted to see this or something like this again in the future; all POSITIVE FEEDBACK COMMENTS!!
ALL were impressed by the magnitude of what was discussed, shown, and editing job involved in this huge project!!!
Way to go ANDY WILSON/OPEN EYE PRODUCTION STAFF!! ******************************************
our librarian was saying their library will NOT let dvds be lent out on INTER-DEPARTMENTAL loan. i didn't know this until now.
hope all your showings go well and you have a FULL HOUSE; all took their handouts i had available for them.
we were small, but had plenty of quality time where all would NOT have been able to talk afterwards before library closed.
paula/i were walking out the door at closing time!
thank you all for indulging me in the 10 days until the screening since it was all last minute arranged since my request kept falling in their "CRACKS"!
i'll support upping yours coming up within days of VIEWING... teamwork in getting out the word!
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bettyg
Unregistered
posted
one of our members asked me how i contacted our local library, and that i put my notes on my posts; so this is why it's being added now!
Nancy,
Here's what I did, and I'm capitalizing to put it on my posts about UOS.
1st, if you have a HOME copy, it can NOT be shown at library; only their COMMUNITY copy can that you pay $101.00 total for dvd/postage/handling.
Below is what I sent to our public library and also to our hospital's CEO: Below you will find details galore I wish to share with you.
I'd like AMES PUBLIC LIBRARY to buy 1 copy of UNDER OUR SKIN, 104 minute DVD, and then have one "FREE" viewing.
So a total time of 2.5 hours would be needed for Aud.
This documentary has all the latest news of what is happening in the Lyme world that has been shoved under the rug by the majority of doctors.
I was bitten by a tick that came off my folks' LIVE Christmas tree 1969; I never saw it nor did I have a bulls-eye rash. I got quite sick and went to a local dr. in town who had an opening that day. He diagnosed me with mono/Epstein Barr virus and confined to bed for 2 weeks.
That was the beginning of my chronic Lyme being misdiagnosed for 34 years by 40-50 McFarland Clinic doctors out of 38.5 years I've had this!!
Since I've kept a journal since becoming a teenager, I used that to pinpoint when and where I was bitten since Iowa is sub-zero weather; I was not a gardener then, and my roommates did NOT have pets who could have had ticks on them!
This would be a wonderful "training" tool for the public since Lyme disease mimics 300 OTHER illnesses! I was very bitter at first until I began all the Lyme research I've done the last 4 years, and learned more.
Sincerely, BettyG
PS.. I ended up BUYING/donating this to our Ames library for showing and to be checked out! They currently did NOT have the funds and never pay $100 for any DVD! ****************
I'd like the hospital to buy 1 copy of UNDER OUR SKIN, 104 minute DVD, and then have TWO ``FREE'' viewings: one for public during a weekend afternoon and the other one: for hospital/CLINIC DOCTORS. ---------------------------
I also have in mind to ask the new infectious Dr. Kabbesch to be on a panel discussion AFTER the documentary ends with me and possibly one chronic Lyme literate MD, LLMD, if he is willing to do this.
So a total time of 2.5 hours would be needed for the Aud.
This documentary has all the latest news of what is happening in the Lyme world that has been shoved under the rug by the majority of doctors.
I was bitten by a tick that came off my folks' LIVE Christmas tree 1969; I never saw it nor did I have a bulls-eye rash. I got quite sick and went to a local dr. in town who had an opening that day. He diagnosed me with mono/Epstein Barr virus and confined to bed for 2 weeks.
That was the beginning of my chronic Lyme being misdiagnosed for 34 years by 40-50 McFarland Clinic doctors out of 38.5 years I've had this!!
Since I've kept a journal since becoming a teenager, I used that to pinpoint when and where I was bitten since Iowa is sub-zero weather; I was not a gardener then, and my roommates did NOT have pets who could have had ticks on them!
This would be a wonderful ``training'' tool for all doctors since Lyme disease mimics 300 OTHER illnesses!
I was very bitter at first until I began all the Lyme research I've done the last 4 years, and learned more.
Sincerely, BettyG ****************
ALSO, here is what SHAZDANCER wrote for me that was emailed to our library supporting the showing of the film!
``Under Our Skin'' was made by Open Eye Pictures, a professional documentary film production company with over 20 years' experience.
Back in the day, their work on AIDS helped raise awareness of the discrimination that patients were suffering in addition to their ills.
I personally contacted someone who was the subject of one of Open Eye Pictures' films (choreographer Anna Halprin) for information about the director's work before he even began the film on Lyme, and she gave him a ringing endorsement.
The film has been screened at several film festivals around the country, and has earned a ``Freddie'' award for its reporting on an infectious disease.
The film was underwritten in part by a grant from the Turn the Corner Foundation, a 501 ( c) (3) whose purpose is ``dedicated to the support of research, education, awareness and innovative treatments for Lyme disease and other tick-borne diseases'' (from their mission statement).
I had the opportunity to have the movie screened at our Public Library in Maine. Over 60 people attended, one of our larger audiences for a library event.
My director has noted it in her report to the City Council as one of the notable events of this year.
I recommend the film to you as quality (though controversial) information for your community. If you have any further questions about screening the film or about the contents of the movie, feel free to contact me.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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