posted
I am in desperate need of your help. I have been unable to find any "Lyme-literate" doctors in Oregon that can help me. I've had symptoms that my doctor's haven't been able to figure out for many months and since I tested negative on a Lyme Disease test (that we had to request ourselves), I assumed that it couldn't be the answer, so I dropped it. After hearing more and more of people's personal experiences with Lyme and how inaccurate the Lyme test can be, this is the only explanation that makes sense.
I am located near Portland, Oregon and need to find a doctor that I can go to. I know that going a distance is pretty much necessary, and I'm fine with that. If anyone can give me ANY information about LLMDs in Oregon or Washington, I would be greatly appreciative. Thank you.
My symptoms include:
-Joint, bone, and muscle pain
-Dizziness, increased motion sickness, etc.
-Nausea
-Being unusually warm or cold
-Headaches
-Electric shock-type pain
-Extreme fatigue
-Stiff Neck
-IBS symptoms
-Skin sensitivity
-Sharp, stabbing pelvic, stomach, and chest pain
-Sudden onset of symptoms, sometimes also disappear extremely quickly
[ 01. November 2008, 06:50 PM: Message edited by: n67018 ]
Posts: 6 | From Oregon | Registered: Nov 2008
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posted
Sure sounds like Lyme to me! Hope you get some help soon!
Jan
-------------------- 3 Strains Mycoplasma and Chlymedia 2001. After treatment fine for all 2004. Major symptoms since 2005. Diag Aug 2008 Lyme. 400 mg/d doxy 500 2/d Ceftin Posts: 164 | From Texas | Registered: Jun 2008
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bettyg
Unregistered
posted
check your profile for names; boy did you luck out! your state has MANY!!
thanks for the great detailed history and symptoms also!! good job
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Betty,
I'm so sorry.
I keep forgetting to send you the crossed off names for the list from Oregon. There are no LLMDs in this state. I have no idea how all the names got on that list.
There is one excellent LL ND. And three others who are well-versed.
I'll talk with some of those at the support group and get on that list that you asked me to look over months ago. I'd been wanting to go over it with some of the leaders in this area and got distracted.
I will get on it.
From another thread, I see that n67018 has found a LL ND, however. And, if it is who I think it is, will be in excellent hands.
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welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
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