posted
First I want to thank everyone who has helped me with my questions regarding CT LLMDs. I have gathered lots of viewpoints and information but feel more at a loss than I have. Of course I'm not going to post doctor's names here, but I have constructed a breakdown of the doctors I have learned about. I'll start with Dr K in CT, who I have been a patient of since June '08. I have come a long way since I started the treatment, but am not at all like my old self. So here we go:
Dr K, CT
Pros
- takes insurance.
- extremely compassionate- she has lived through severe lyme & says she is (an appears to be) fine. She has always returned my calls. Even when I was sure I was going to die at 12:30AM
Cons
- I've heard from many that she does not treat aggressively enough (I've been in Biaxin & Plaquenil combo & then only Doxy in the 8 moths of treatment).
- She does not comment on supportive diet and little on supplements
- I do not believe she is an ILADS member (how much does this count?)
- My biggest issue is that she will not treat co-infections w/ out supportive blood test. From Fscan/ Rife & symptoms I believe that I have Bartonella & probably babesia & erchilea (sorry for the spelling).- I have tested negative for the co-infections
Dr S, , CT
Pros
- ILADS member
- Aggressive meds
- Does supportive diet & supplements
- Give patients cell # for care
Cons
- he will not treat co-infections w/ out supportive blood test
- does not take insurance
Dr S, CT
Pros
- None
Cons
- does not test for or treat co-infections
- does not take insurance
Dr W, CT
Pros
- takes my insurance.
- Uses Burascanno's guidelines
- On the same page as Dr P in Wilton
Cons
- no bedside manner.
- Does not do supportive diet & supplements.
Dr K, CT
Pros
- ILADS member
Cons
- ``Is either a miracle worker or he dumps you''
Dr C, CT
- I have no feedback
Dr P, CT
Pros
- ILADS member
- Will treat co-infections w/ out a positive test
Cons
- No supportive diet/ supplements.
- Does not take insurance
This really sucks- to be honest I have a kid in daycare ($1,000 per month)- I do not see how I can afford to see an expensive doctor who does not take insurance......I think my best bet is to see Dr W in Norwalk if he is indeed on the same page as Dr P -especially in regards to co-infections.
Again this really sucks- this disease is bad enough without all the additional stuff (I really don't mean ``stuff'') you have to go through.
posted
You're not supposed to post the Dr's initials AND the city .. only the state. It's too easy for the bad boys to figure out.
Too much information being made public about our LLMD's.
Sorry.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
sman,
here's how to EDIT your post and DELETE ALL CITY NAMES GIVEN BY YOU:
click on pencil, 3rd box to right of your name,
this opens up subject line and text.
did you mark lower left hand box to receive all replies??
delete all city names; click edit send. thx. ***********************
as lymetoo said; too MUCH info on here; read over the lymenet rules found at bottom of screen ... click on it to read them ok!
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
SMan:
I imagine that you already know why some LLMDs do not take insurance.... The insurance companies dictate treatment protocols to them and length of time for treatment. Many patients have had their treatments cut off midstream by insurance companies that are following IDSA guidelines for Lyme Disease treatment.
Those LLMDs who decide not to take insurance have done so to protect both their patients and themselves. Please know that those LLMDs who decide not to take insurance do not do so for any other reasons. (Additionally, most health plans will allow reimbursement for "out of network" doctor visits .)
Hope this helps to explain things a little...
Nancy
Posts: 1487 | From New England | Registered: Oct 2000
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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