It wasn't my intention to ever post on a Lyme Disease site until I made a few comparisons with a friend who has it and the desperation to find a DX. I'll TRY to keep this as simple as possible.
It started with my left eye, almost exactly a year ago. I had been exercising, took a break and it looked like someone put a piece of wax paper over my eye for about 3 minutes. I, also, got very dizzy. Talk about freaky, eh?
A couple weeks later, I pass out in my car for an hour while smoking a cig just to wake up choking on my own spit, cig still in hand and enduring a massive tremor in my left arm. I call the doc, they call the ambulance.
"Must be anxiety," they said.
All the Cat scans and blood work were normal. Fantastic! A mystery! Where's Scooby Doo when you need him?
I talked to my sis about it, remembering, also, that my left arm had been acting funny. I couldn't drive with it, anymore, or talk on a cell phone. It was practically useless, feeling numb, fatigued, plagued with pins and needles or just in pain. She screams out "MS!" I was insulted... I thought she was messing with me until she couldn't stop crying 'til the next day. So I did my research and it got me thinking. Hmm...a lot of the things on that list sound pretty familiar...
Here are my symptoms to the current date:
Summer of 2007 - Bottom half of my face (about up to the bridge of my nose) goes completely numb. I start shaking like a maniac. This lasts for a good 2-3 hours. Could barely walk upon getting out of the car.
Slamming into doorways when trying to walk through them.
Slamming into desks, tables, etc... when trying to walk by them.
Horrible depth perception with my ears (i.e. hearing things behind me when they're in front of me).
Tired all the time.
Random anxiety attacks all day, everyday.
Loss of bladder/bowel control or the urge to go, frequently, for no good reason.
Random "sunburn" pain and/or itchiness on areas on my body.
Whole left side of body was numb, fatigued and/or feeling pins and needles, at some point.
The worst pain I've ever felt in both my legs for about 2 days. NOTHING helped.
Black or white "swarms" of glowing spots.
Loss of taste in my mouth or poison taste in my mouth.
Shaking...my whole body...or tremors in my limbs.
Loss of balance.
Forgetting things (how to spell, that I'm carrying things, how to get back to my house, etc...).
Headaches/migraines I've had for years.
Partial/total loss of vision on several occasions.
"Lightning bolt" pains up and down my spine.
Well....the list goes on and on. I suppose I'll list my tests and results and get on with the posting.
MRI - positive with white matter. EEG - abnormal. EKG - normal. Optic Neuritis Test - normal. Sleep Study - said to have Idiocratic Hypersomnia. Blood work - negative for Lyme, diabetes or anything else they may have been looking for. My doctor said I was healthier than a lot of people.
My primary physician points out that MS can't be ruled out, just yet. My neurologist says she can't think of any more tests she can give me and shoved me off to get a second opinion.
I'm now waiting to get an appointment with a new doctor.
I'm angry, I want a diagnosis and I want to be fixed.
Help!
-------------------- [insert motivational quote here] Posts: 27 | From CT | Registered: Feb 2009
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