posted
I am not a doctor but it screams LYME to me. My symptoms also suggested MS. Turned out to be Lyme. But I had to diagnose myself and get confirmation from a LLMD.
My pharmacist, who knows about my Lyme diagnosis, asked me if my symptoms were suggestive of MS, because she knows someone who's getting a spinal tap who's been having MS-like symptoms. Before she even finished the sentence, I said 'LYME!"
MS is rare. Lyme is everywhere. Good luck.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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bettyg
Unregistered
posted
WELCOME 77 !! check your profile for private message i'm sending you of OHIO llmds!
please go back and break up your solid block text into short paragraphs for us NEURO folks like me who can not read or comprehend what you wrote; we'd like to be able to help you if you help us!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I am sending you a Private Message. Ann - OH
posted
I am from Grove City Ohio and I have been suffering from several odd symptoms with no diagnosis. I have had a rash (without bulls eye) that is generalized and it comes and goes. I have spots in my vision, stiff neck and shoulders, sore all over (no fever)and now have episodes similar to panic attacks. I also have tremors in my head and difficulty breathing. I have been to the ER and my vitals are great (no heart attack), MRI was good, xray of neck showed osteoarthritis. I had a test for Lyme and it came back negative. I think I really need to see a Lyme specialist. Anyone know of one in central Ohio? By the way, I do know that I had 2 separate ticks bite me, but it was a long time ago...
Posts: 2 | From Grove City, Ohio | Registered: Mar 2009
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posted
I am also looking for an LLMD in Central Ohio. I had many blood test, I thought I may have had RA. The lymes came back Positive. They retested me again Thu. have not got the results back yet.
-------------------- Greg10710 Posts: 1 | From Thornville, Ohio | Registered: Mar 2009
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bettyg
Unregistered
posted
welcome greg! which labs are performing your lyme tests? igenex, mdlab, fry, ??
what specific lyme test are they performing?
check your profile for few ohio llmds they are **************************************************
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
IP: Logged |
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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