posted
I'm a 24 year old that has been symptomatic for almost 5 years but just recently diagnosed. I'm originally from Rochester, NY, but I'm living in Washington DC right now. I will be moving back home to Rochester to start IV abx soon, so I would like to have the name of an area LLMD in the Rochester/Buffalo area.
From being bounced around like a pinball from doctor to doctor for 5 years in Rochester, I get the sense that Rochester-area docs don't have a clue about Lyme. I've heard the line "Monroe County has never had a case of Lyme disease" so many times it's pathetic. (Are they all in denial?!?) Are there any good ones in the area?
Thanks in advance. I tried to search the archives but I guess nobody publishes names.
[ 03-09-2009, 12:28 AM: Message edited by: Rick84 ]
Posts: 3 | From Washington, DC | Registered: Mar 2009
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bettyg
Unregistered
posted
welcome rick; outstanding, detailed and broken up post!! way to go!
not much up your way in buffalo, but check your profile above for my pm to you on NY state llmds!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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You said you were bounced around in Rochester by many Dr.s but yet you live in D.C ? Did you have a good LLMD in D.C? Maybe ask your current LLMD.
True there are no true LLMD's in Rochester.
But we do have a fantastic Lyme support group near Rochester. You may want to stop by if you can and meet some of us and get lots of your questions answered.
Be well
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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